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Susannah Fox

I help people navigate health and technology.

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moms

Who are you addicted to on Twitter? Parents edition.

July 25, 2013 By Susannah Fox 6 Comments

My mom like twitter very much

Here are a few of the people I’m addicted to for insights on parenting & health: @SavingCase – Mom of a child with a rare disease. I’m addicted to how she keeps the window into her life crystal clear so we all can learn from her experiences. Erin Moore – Mom of a child with […]

Filed Under: key people Tagged With: caregivers, moms, Twitter

Mother’s Day

May 12, 2013 By Susannah Fox 13 Comments

I filled out a form recently which asked: What motivates you to innovate? Without hesitation I typed in “Motherhood.” I had no idea that having kids would rewire my brain so fundamentally, but it did. A few posts to contemplate on Mother’s Day… Mothering Cal: What I learned from parenting a terminally ill child, by […]

Filed Under: end of life, maternity Tagged With: moms

The boy with a thorn in his joints (and the mom who turned over every rock)

February 6, 2013 By Susannah Fox 8 Comments

Questions marks painted on pavement

When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: moms, New York Times, peer-to-peer healthcare, Rare Disease, rare diseases

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Recent Comments

  • Mighty Casey on Networkers pool resources: “Finding “that one person” who becomes your gateway drug to peer community resources – for me, that was Alicia Staley,…” May 25, 10:38
  • Susannah Fox on Networkers pool resources: “Thanks, Kathy! Yes, I have learned so much from Colleen and the Mayo communities. And yes, I like the idea…” May 24, 10:16
  • kathy kastner on Networkers pool resources: “My heart soared when my (sadly retired now) Family doc said, “if you have any good patient-to-patient resources, I’ll put…” May 23, 22:15

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popular posts

  • Networkers pool resources
  • Hack needed: Tiny pills, trembling hands
  • A taxonomy of health data
  • Seekers go out on the hunt

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