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Susannah Fox

I help people navigate health and technology.

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moms

Who are you addicted to on Twitter? Parents edition.

July 25, 2013 By Susannah Fox 6 Comments

My mom like twitter very much

Here are a few of the people I’m addicted to for insights on parenting & health: @SavingCase – Mom of a child with a rare disease. I’m addicted to how she keeps the window into her life crystal clear so we all can learn from her experiences. Erin Moore – Mom of a child with […]

Filed Under: key people Tagged With: caregivers, moms, Twitter

Mother’s Day

May 12, 2013 By Susannah Fox 13 Comments

I filled out a form recently which asked: What motivates you to innovate? Without hesitation I typed in “Motherhood.” I had no idea that having kids would rewire my brain so fundamentally, but it did. A few posts to contemplate on Mother’s Day… Mothering Cal: What I learned from parenting a terminally ill child, by […]

Filed Under: end of life, maternity Tagged With: moms

The boy with a thorn in his joints (and the mom who turned over every rock)

February 6, 2013 By Susannah Fox 8 Comments

Questions marks painted on pavement

When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: moms, New York Times, peer-to-peer healthcare, Rare Disease, rare diseases

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Recent Comments

  • Kevin Lawrence on Caregiver starter pack: “We recently read The End-of-Life Handbook in our book club on Smart Patients. It’s aimed at caregivers rather than patients…” Feb 2, 09:41
  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58

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Topics

  • Beauty and Wonder
  • Demographics
  • Key People
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popular posts

  • Caregiver starter pack
  • "A jumbo jet a day" - who said it?
  • Hack needed: Tiny pills, trembling hands
  • Mystery solved. Again.

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