Here are a few of the people I’m addicted to for insights on parenting & health: @SavingCase – Mom of a child with a rare disease. I’m addicted to how she keeps the window into her life crystal clear so we all can learn from her experiences. Erin Moore – Mom of a child with […]
moms
Mother’s Day
I filled out a form recently which asked: What motivates you to innovate? Without hesitation I typed in “Motherhood.” I had no idea that having kids would rewire my brain so fundamentally, but it did. A few posts to contemplate on Mother’s Day… Mothering Cal: What I learned from parenting a terminally ill child, by […]
The boy with a thorn in his joints (and the mom who turned over every rock)
When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]
Recent Comments