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Susannah Fox

I help people navigate health and technology.

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Twitter

Mystery solved. Again.

January 7, 2020 By Susannah Fox 13 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

Friends, I have yet another so-extraordinary-it’s-ordinary story of peer-to-peer health care to share. Andrew Wilkinson wrote on Twitter: A few months ago, as a last ditch effort, I posted on Twitter about the horrible acid reflux which I’d been suffering from for almost 10 years. I had tried just about everything. Proton pump inhibitors, dietary […]

Filed Under: peer-to-peer health care, social media Tagged With: peer-to-peer healthcare, Twitter

Who are you addicted to on Twitter? Research watchdog edition.

July 29, 2013 By Susannah Fox 3 Comments

Each one of these people cuts through hype and makes me feel smarter: Hilda Bastain – Editor & curator, PubMed Health. I’m addicted to her cartoons: Statistically funny. And I’m a new fan of her SciAm blog: Absolutely Maybe. @Laikas – Medical librarian, scientist, mom, human. I’m addicted to posts like: “Medpedia, the Medical Wikipedia, is Dead. And […]

Filed Under: key people, research issues, understanding statistics Tagged With: Twitter

Who are you addicted to on Twitter? Parents edition.

July 25, 2013 By Susannah Fox 6 Comments

My mom like twitter very much

Here are a few of the people I’m addicted to for insights on parenting & health: @SavingCase – Mom of a child with a rare disease. I’m addicted to how she keeps the window into her life crystal clear so we all can learn from her experiences. Erin Moore – Mom of a child with […]

Filed Under: key people Tagged With: caregivers, moms, Twitter

Sincerity in the storm (welcome to our world)

November 4, 2012 By Susannah Fox 5 Comments

Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: – Twitter turns serious during a crisis – Certain users and hashtags can […]

Filed Under: patient networks, peer-to-peer health care, social media Tagged With: #bcsm, #whatifhc, New York Times, Twitter

Participatory Research

July 11, 2012 By Susannah Fox Leave a Comment

I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.

Filed Under: participatory research, research issues, social media, trends & principles Tagged With: e-patients, participatory research, Pew Internet, Twitter

What’s your health care dream?

February 3, 2012 By Susannah Fox 11 Comments

Regina Holliday's painting for the Families USA conference

Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – spotlights on circles of people, […]

Filed Under: hc's problem list, reforming hc, social media Tagged With: #whatifhc, C3N Project, Regina Holliday, The Walking Gallery, Twitter

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popular posts

  • Hack needed: Tiny pills, trembling hands
  • Mystery solved. Again.
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