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Susannah Fox

I help people navigate health and technology.

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New York Times

The New York Times: “Sometimes Patients Simply Need Other Patients”

July 9, 2018 By Susannah Fox 1 Comment

Screen Shot of the NYT Upshot column on July 9 2018

Aaron E. Carroll and Austin Frankt co-wrote an excellent article about peer-to-peer health care in The New York Times today. An excerpt: In an ideal world, when we are faced with a new health problem, a clinician is available to sit down and address all our questions and anxieties about the condition and its treatment. […]

Filed Under: peer-to-peer health care Tagged With: breast cancer, diabetes, life-threatening illness, New York Times, Peer To Peer, peer-to-peer healthcare

Ribbons, ribbons, everywhere

April 28, 2013 By Susannah Fox Leave a Comment

Ribbon shape on wall

Peggy Orenstein‘s article, “Our Feel-Good War on Breast Cancer,” is worth one of your precious NYTimes.com chits (unless, of course, you’re a subscriber, in which case you have hopefully already devoured it). But don’t just take my word for it, read this post by Katherine O’Brien of the Metastatic Breast Cancer Network — the bloggers […]

Filed Under: policy issues, research issues Tagged With: breast cancer, cancer, New York Times, Peggy Orenstein

Who provides the fuel for the health data fire? Hint: Look in the mirror.

April 1, 2013 By Susannah Fox 6 Comments

“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]

Filed Under: key people, trends & principles Tagged With: Alessandro Acquisti, E-Patient Dave, Ian Eslick, New York Times, patientslikeme, privacy, Somini Sengupta, TuDiabetes, William Gunn

The boy with a thorn in his joints (and the mom who turned over every rock)

February 6, 2013 By Susannah Fox 8 Comments

Questions marks painted on pavement

When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: moms, New York Times, peer-to-peer healthcare, Rare Disease, rare diseases

“So many quiet heroes and heroines who live among us…”

November 21, 2012 By Susannah Fox Leave a Comment

– Zoe Brain, in a comment on the New York Times magazine story, The Hazards of Growing Up Painlessly, which garnered an extraordinary display of public ignorance and fellowship around rare conditions. My hope is that the reporter and editors read every comment and learned from the community peer review of the article.

Filed Under: e-patient stories Tagged With: New York Times, Rare Disease

Sincerity in the storm (welcome to our world)

November 4, 2012 By Susannah Fox 5 Comments

Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: – Twitter turns serious during a crisis – Certain users and hashtags can […]

Filed Under: patient networks, peer-to-peer health care, social media Tagged With: #bcsm, #whatifhc, New York Times, Twitter

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