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“So many quiet heroes and heroines who live among us…”

November 21, 2012 By Susannah Fox Leave a Comment

– Zoe Brain, in a comment on the New York Times magazine story, The Hazards of Growing Up Painlessly, which garnered an extraordinary display of public ignorance and fellowship around rare conditions. My hope is that the reporter and editors read every comment and learned from the community peer review of the article.

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Filed Under: e-patient stories Tagged With: New York Times, Rare Disease

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Recent Comments

  • Kevin Lawrence on Networkers pool resources: “Thank you, Casey! I know Charlie second-hand, through Gilles but we’ve never connected. I’ll reach out!” May 26, 09:56
  • Mighty Casey on Networkers pool resources: “Wow, Kevin, you’re juggling a lot! Glad you’ve found some resources/connections, would definitely say that #btsm is a good source…” May 26, 09:31
  • Susannah Fox on Networkers pool resources: “Kevin, I’m at a loss for words at the depth of the insights and poignancy you shared here. Let’s begin…” May 26, 08:32

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