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Susannah Fox

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“So many quiet heroes and heroines who live among us…”

November 21, 2012 By Susannah Fox Leave a Comment

– Zoe Brain, in a comment on the New York Times magazine story, The Hazards of Growing Up Painlessly, which garnered an extraordinary display of public ignorance and fellowship around rare conditions. My hope is that the reporter and editors read every comment and learned from the community peer review of the article.

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Filed Under: e-patient stories Tagged With: New York Times, Rare Disease

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  • Kevin Lawrence on Caregiver starter pack: “We recently read The End-of-Life Handbook in our book club on Smart Patients. It’s aimed at caregivers rather than patients…” Feb 2, 09:41
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