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Susannah Fox

I help people navigate health and technology.

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privacy

Who provides the fuel for the health data fire? Hint: Look in the mirror.

April 1, 2013 By Susannah Fox 6 Comments

“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]

Filed Under: key people, trends & principles Tagged With: Alessandro Acquisti, E-Patient Dave, Ian Eslick, New York Times, patientslikeme, privacy, Somini Sengupta, TuDiabetes, William Gunn

A New Conversation About Health Privacy: Who’s In?–Susannah Fox

May 21, 2010 By Susannah Fox 50 Comments

Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care.

Filed Under: patient networks, policy issues Tagged With: Facebook, Hipaa, patientslikeme, Pew Internet, privacy

Privacy can kill, openness can heal–Susannah Fox

February 11, 2010 By Susannah Fox 64 Comments

If you follow Jeff Jarvis on Twitter or read his blog, you know (maybe more than you wanted to) about his fight against prostate cancer. I’ve mostly paid attention to what he’s written about technology and journalism, but check out this excerpt from his post, The German privacy paradox: I prefer to turn the question […]

Filed Under: patient networks Tagged With: ACOR, health 2.0, patientslikeme, privacy

Patient Centered Health Information Technology–Susannah Fox

November 16, 2007 By Susannah Fox 5 Comments

Filed Under: positive patterns Tagged With: e-patient, information technology, privacy

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popular posts

  • Helping people find the needle in a data haystack
  • Hypothesis generator
  • Hack needed: Tiny pills, trembling hands
  • Case study: Brain surgery

Recent Comments

  • Susannah Fox on Podcasts: What are you listening to?: “Because the conversation is never over, here's a new podcast I've been listening to: Who Lives Like This?! The grit…” Dec 13, 09:58
  • Susannah Fox on Public Q&A: conference organizing: “Another great tip via Rebecca Robbins, a reporter for STATnews, who tweeted: My primary feedback on any and every conference…” Dec 5, 16:04
  • Susannah Fox on Public Q&A: conference organizing: “Since this blog is my outboard memory, here's an article I found related to this topic: How we're making our…” Dec 3, 07:10

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