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Susannah Fox

I help people navigate health and technology.

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e-patient

41% of Adults are “Activated Patients”

October 21, 2008 By Susannah Fox 8 Comments

Two sets of hands sort pills into a pillbox

The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter.   The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).

Filed Under: demographics, research issues Tagged With: data, e-patient, survey

E-patient Interview: Sheryl Stein

May 1, 2008 By Susannah Fox 5 Comments

Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: blog, chronic disease, Common Variable Immunodeficiency, community, CVID, Delivery Methods, Diagnosis, Diagnostician, e-patient, Gammaglobulin Therapy, Health Care Decisions, Humor On, Immune Deficiency Foundation, Ingrained Habit, Listserve, NIH, No Doubt, Pamphlets, Patient Interview, Patient Interviews, patient networks, Pharmaceutical Company, Pros And Cons, Self Advocate, self-care, Whopper

E-health Reality Check–Susannah Fox

January 14, 2008 By Susannah Fox 1 Comment

Filed Under: trends & principles Tagged With: cancer, doctors, e-patient, hints, librarians, survey

May Old Acquaintance Be Recalled–Susannah Fox

December 22, 2007 By Susannah Fox Leave a Comment

Filed Under: pts as teachers Tagged With: colon cancer, e-patient

Talk of the Nation–Susannah Fox

December 14, 2007 By Susannah Fox 8 Comments

Filed Under: reforming hc Tagged With: care, doctors, e-patient, Google, healthcare, npr

Patient Centered Health Information Technology–Susannah Fox

November 16, 2007 By Susannah Fox 5 Comments

Filed Under: positive patterns Tagged With: e-patient, information technology, privacy

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popular posts

  • Hack needed: Tiny pills, trembling hands
  • Sunflowers turn to each other for help
  • Hypothesis generator
  • Mystery solved. Again.

Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
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