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Susannah Fox

I help people navigate health and technology.

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data

HIPAA’s Broken Promise

September 14, 2009 By Susannah Fox 23 Comments

Large house built directly on sand, now collapsing

If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data […]

Filed Under: health data, policy issues Tagged With: Anonymization, Computer Scientists, data, Fellow Patients, Fig Leaf, Free Flow, Glass Houses, Health Data, Health Information Technology, Health Professionals, Hipaa, Information Privacy, Medical Researchers, Medical Secrets, Ohm, Paul Ohm, Privacy Problem, Unicorns

Happy Dogs in a Pile of Sticks (Spreading Improvement in Chronic Disease Care)

November 11, 2008 By Susannah Fox 8 Comments

The California HealthCare Foundation’s Chronic Disease Care conference was so packed with great panels that I needed help choosing my targets. Here is the first in a series of posts about this event. Spreading Improvement: After the Innovators/Early Adopters

Filed Under: positive patterns, reforming hc Tagged With: california healthcare foundation, Christy Mokrohisky, chronic disease, data, Diane Stewart, Hunter Gatewood, innovation, Lisa Johnson, Mark Smith, safety net

Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?–Susannah Fox

November 5, 2008 By Susannah Fox 8 Comments

The Pew Internet Project is finalizing our fall health survey and we are now in the painful cut phase. Here’s a question I’m hoping to save in a shorter form: At any point in your last search for health information online did you feel any of the following things? At any point, did you feel…?

Filed Under: demographics Tagged With: data, pew internet project, survey

Participatory Medicine, Connected Health–Susannah Fox

October 30, 2008 By Susannah Fox 16 Comments

The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008.  I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]

Filed Under: trends & principles Tagged With: data, e-patients, participatory medicine

41% of Adults are “Activated Patients”

October 21, 2008 By Susannah Fox 8 Comments

Two sets of hands sort pills into a pillbox

The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter.   The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).

Filed Under: demographics, research issues Tagged With: data, e-patient, survey

Health Care Consumerism–Susannah Fox

April 14, 2008 By Susannah Fox Leave a Comment

Filed Under: demographics Tagged With: consumer, data, online, participatory medicine, survey, typology

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