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Susannah Fox

I help people navigate health and technology.

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Health Professionals

Participatory medicine and health data rights on NPR

November 16, 2009 By Susannah Fox 23 Comments

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]

Filed Under: general, health data Tagged With: Answering Questions, Assertions, Buddies, Case Mix, Collective Decisions, Health Care Decisions, Health Care Revolution, Health Data, health information, Health Professionals, Health Searches, Health Systems, John Horrigan, Joseph Shapiro, Medicine, Medicine And Health, Mediums, npr, Offline Sources, Pareto Principle, Partnership, Person Accounts, Pew Research Center, Real Health, Tom Ferguson, Twitter, Walks Of Life

HIPAA’s Broken Promise

September 14, 2009 By Susannah Fox 23 Comments

Large house built directly on sand, now collapsing

If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data […]

Filed Under: health data, policy issues Tagged With: Anonymization, Computer Scientists, data, Fellow Patients, Fig Leaf, Free Flow, Glass Houses, Health Data, Health Information Technology, Health Professionals, Hipaa, Information Privacy, Medical Researchers, Medical Secrets, Ohm, Paul Ohm, Privacy Problem, Unicorns

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popular posts

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Recent Comments

  • Susannah Fox on Data-driven support for vulnerable populations: “Thanks, Mary!” Apr 8, 14:12
  • Susannah Fox on A futurist’s perspective on LongCovid: “Thank you, Gary, for this “Yes, and…” comment. “Postviral syndromes are real” –> Yes, and let’s remember that the next…” Apr 8, 11:19
  • Mary C Aviles on Data-driven support for vulnerable populations: “I love the work that bloomed from IBM’s key insight about what returning vets needed AND the juxtaposition to applications…” Apr 8, 10:51

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