Every time I travel abroad, I fall a little bit in love with the country I visit. My trip to Sweden was no exception. I love how bikers have an equal right to use the streets. I love how there are stroller tracks on public stairs to make it easier for parents to navigate. I […]
health information
Health Info Have-Nots
I just published a quick take on who doesn’t gather health information online, including the stark finding that three-quarters of U.S. adults who have less than a high school education say they do not get health information online. One survey question I cited dates back to 2002, but I think it is still interesting. Here’s […]
Access is (almost) everything–Susannah Fox
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center’s Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial and ethnic categories in the U.S.: Latinos Online, 2006-2008 From 2006 to 2008, internet use among Latino adults rose by 10 percentage points, from 54% to 64%. […]
Participatory medicine and health data rights on NPR
NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]
Tell the FDA the whole story, please
I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of […]
Participation Matters–Susannah Fox
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one. What are you doing in […]
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