Medicine

Participatory medicine and health data rights on NPR

November 16, 2009 By Susannah Fox 23 Comments

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]

Age of Participatory Medicine–Susannah Fox

August 20, 2009 By Susannah Fox 2 Comments

Kevin Kruse posted a video yesterday which includes this line: The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my reports). See what you think.

Susannah Fox on What if your clinician gave you a prescription to check out a patient group that they knew to be good?: “Friends, thank you again for the wonderful conversation so far. I'd like to add this article to the mix: Indicators…” Feb 20, 17:18
Susannah Fox on What if your clinician gave you a prescription to check out a patient group that they knew to be good?: “Camila, I love hearing that this is becoming a practice — let’s hope it spreads.” Feb 18, 15:59
Susannah Fox on What if your clinician gave you a prescription to check out a patient group that they knew to be good?: “Thank you, Alex, it did get to me! Sorry for the delay in approving it (an anti-spam feature means I…” Feb 18, 15:58

Participatory medicine and health data rights on NPR

Age of Participatory Medicine–Susannah Fox

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