Medicine

Participatory medicine and health data rights on NPR

November 16, 2009 By Susannah Fox 23 Comments

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]

Age of Participatory Medicine–Susannah Fox

August 20, 2009 By Susannah Fox 2 Comments

Kevin Kruse posted a video yesterday which includes this line: The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my reports). See what you think.

Susannah Fox on Public Q&A: COVID19 precautions and care: “Thanks, Sharon! I love the words emblazoned on the browser tab for the site: You Are the Best Source of…” Mar 31, 19:52
Sharon Terry on Public Q&A: COVID19 precautions and care: “We've sewed a bunch of masks, for the same reason you state. We've created a COVID registry because this is…” Mar 31, 19:17
Susannah Fox on Public Q&A: Peer advice during a pandemic: “After sharing what I'd learned so far today on Twitter, I connected with Rand directly, who shared their more recent…” Mar 30, 10:43

Participatory medicine and health data rights on NPR

Age of Participatory Medicine–Susannah Fox

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