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Susannah Fox

I help people navigate health and technology.

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e-patients

Never assume that what you are seeing or experiencing is everyone else’s reality.

April 15, 2013 By Susannah Fox 1 Comment

Light bulbs in the night sky - a photo by Ted Eytan

Atul Gawande can shine a bright spotlight, even with just a few tweets. On Saturday he linked to an article about new social media guidelines for physicians which states: Aside from not “friending” patients [on Facebook], the guidelines also recommend the following to physicians: • Don’t use text messaging for medical interactions, even with established […]

Filed Under: key people, net-friendly docs Tagged With: American Medical Association, Atul Gawande, e-patients, Rosalie Yerkes Figge, Tom Ferguson

Participatory Research

July 11, 2012 By Susannah Fox Leave a Comment

I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.

Filed Under: participatory research, research issues, social media, trends & principles Tagged With: e-patients, participatory research, Pew Internet, Twitter

E-patients, Cyberchondriacs, and Why We Should Stop Calling Names

August 30, 2010 By Susannah Fox 73 Comments

New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite you (everyone!) to join our discussion on Wed. Sept. 1 at […]

Filed Under: trends & principles Tagged With: Alex Howard, Amy Tenderich, Carlos Rizo, Clay Shirky, Cyberchondriac, e-patients, Harris Interactive, Jen McCabe, Pew Internet

“Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT–Susannah Fox

February 2, 2009 By Susannah Fox 7 Comments

Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.

Filed Under: found on the net Tagged With: diabetes, diabetesmine, e-patients

Patient Voices at CHCF’s Chronic Disease Care Conference

December 29, 2008 By Susannah Fox 13 Comments

This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured this session: Patient Involvement Makes People Smile Here is each person’s story:

Filed Under: e-patient stories, positive patterns, reforming hc Tagged With: california healthcare foundation, chronic disease, conferences, diabetes, e-patients

Patient Involvement Makes People Smile–Susannah Fox

November 10, 2008 By Susannah Fox 1 Comment

Ted Eytan’s Photo Friday features a crowd of chronic disease care providers listening to patients tell their stories — and smiling as they see the impact of what they do. As I wrote in the comments, I’ll post here soon with more notes, but this photo is a good start toward understanding the impact of […]

Filed Under: found on the net Tagged With: chronic disease, e-patients, providers, Ted Eytan

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popular posts

  • Hack needed: Tiny pills, trembling hands
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Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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