I will be heading to San Francisco this week to attend the Chronic Disease Care conference sponsored by the California HealthCare Foundation. Registration is closed but I promise to take notes on as many panels as possible. Please help me choose from the smorgasbord of topics and I’ll make you a plate.
e-patients
Participatory Medicine, Connected Health–Susannah Fox
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]
Go online. Not too much. Mostly…?–Susannah Fox
Michael Pollan’s answer to diet angst is to “Eat food. Not too much. Mostly plants.” Is there an equivalent maxim for information angst? If not, does someone out there want to make one up? Because a new study published in Cancer argues that e-patients can take a common-sense approach to online health research and do […]
Harnessing Openness–Susannah Fox
The Committee for Economic Development (CED) is an independent, non-partisan research organization with a trustee list dominated by corporations (not that there’s anything wrong with that — my own funders, the Pew Charitable Trusts, are also listed on the CED site). CED recently released an engaging report entitled, “Harnessing Openness to Transform American Health Care” […]
Consumer Resources–Susannah Fox
As we continue our discussion of the definitions of 2.0 and user-generated content (UGC), I thought I’d highlight some other buzzwords and link to a few consumer-oriented resources. I still trust librarians to help me judge information sources, so my first set of links are to articles that first appeared in The Journal of the […]
Open Internet vs. Closed Doctor-Directed Systems–Susannah Fox
Our research shows that most people just use a general search engine when they have a health question, but many report feeling overwhelmed by what they find. What’s the trade-off? What other resources are out there for e-patients?
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