All signs point to a social revolution in health. As I’ve put it, the internet gives us access not only to information, but also to each other. Crucial advice can come from a just-in-time someone-like-you as well as from a clinician. So what happens to people who are shy or introverted? If sharing and learning […]
e-pts resources
Evolution of online patient communities
A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]
Engage With Grace
This Thanksgiving, I am hosting the guest post below, participating in the annual Engage With Grace blog rally, to encourage those who haven’t considered their end-of-life preferences start thinking about them, and asking those who have done it to consider how their decisions may have changed over time. It’s good food for thought. Wishing you […]
“Googling is a sign of patient engagement”
Wrap your head around that idea. It’s one of the many insights I learned from reading Let Patients Help — and I’m freaking quoted in that chapter! But that’s E-patient Dave, seeing things that nobody else sees and, in this case, making up words like “boogloo” (Bing + Google + Yahoo). As he writes: 81% […]
Visualize This: An e-Patient’s Medical Life History
The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________ Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of […]
The Power of Rare Disease Patients
I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a transformation of healthcare in this country. Pew’s Susannah Fox has named them […]
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