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Susannah Fox

I help people navigate health and technology.

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Danny Sands

What if your clinician gave you a prescription to check out a patient group that they knew to be good?

February 12, 2020 By Susannah Fox 44 Comments

Post-it notes fill one section of a diagram

Amy Gleason (@ThePatientsSide) captured this line of mine, delivered on a panel at the Health Datapalooza yesterday. Her tweet generated an interesting cascade of reactions ranging from: “This is potentially dangerous” to “This is obvious (and old news).” I thought I’d expand on my observations and see if people want to expand on theirs in […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: ACOR, Bon Ku, Danny Sands, David Fajgenbaum, E-Patient Dave, Health Datapalooza, peer-to-peer healthcare

Aging, housing, health

September 12, 2017 By Susannah Fox 2 Comments

Early 20th century typewriter keys

Brandeis University hosted a one-day symposium on aging, housing, health, technology, and other issues. Thanks to the people who captured these insights!

Filed Under: demographics, policy issues, trends & principles Tagged With: Alan Kay, Alexandre Kalache, Atlas of Caregiving, Brandeis University, caregivers, Danny Sands, Leslie Kernisan, Muriel Gillick, Pamela Ressler, Pippa Shulman, Rosalie Yerkes Figge, Ruth Finkelstein

How did you find your people?

April 17, 2017 By Susannah Fox 33 Comments

The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]

Filed Under: peer-to-peer health care Tagged With: ACOR, ALS, cancer, cystic fibrosis, Danny Sands, E-Patient Dave, Emily Kramer-Golinkoff, patientslikeme, peer-to-peer healthcare, Smart Patients

“Googling is a sign of patient engagement”

May 3, 2013 By Susannah Fox 10 Comments

Let Patients Help book cover

Wrap your head around that idea. It’s one of the many insights I learned from reading Let Patients Help — and I’m freaking quoted in that chapter! But that’s E-patient Dave, seeing things that nobody else sees and, in this case, making up words like “boogloo” (Bing + Google + Yahoo). As he writes: 81% […]

Filed Under: e-pts resources, key people, net-friendly docs Tagged With: Danny Sands, E-Patient Dave, Let Patients Help

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  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
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