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Susannah Fox

I help people navigate health and technology.

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Youtube

“They come from the same community”

June 13, 2017 By Susannah Fox 3 Comments

Long fingers circling a wrist

I often share links on Twitter, but without the context I’d love to give to each one. A few recent stories of the power of peer connection around health and well-being: Washington Post: Butterfly babies : A rare disease makes these young girls’ skin break and peel at the slightest touch, like a butterfly’s wings As […]

Filed Under: peer-to-peer health care Tagged With: Flickr, India, mental health, npr, peer counseling, Rare Disease, rare diseases, Washington Post, Youtube

Public Q&A: Alternatives to Facebook and YouTube?

December 4, 2014 By Susannah Fox 5 Comments

Kathleen Bogart, PhD, studies how people communicate across disability. I met her through the work I’ve done with the Moebius Syndrome Foundation (and I wrote about her research in 2012: Facial Paralysis, Not Personality Paralysis). She emailed me with a very intriguing question, so I’m sharing it here for discussion: Moebius Syndrome is a highly […]

Filed Under: public Q&A Tagged With: Facebook, Moebius Syndrome, Viddler, Vimeo, Youtube

Superheroes and rock stars at the Institute of Medicine

October 14, 2009 By Susannah Fox 7 Comments

Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was captured in a short video. ___________________ The Institute of Medicine’s recent […]

Filed Under: key people, Why PM Tagged With: ACOR, Amy Abernethy, Annals Of Internal Medicine, Carolyn Clancy, Chordoma, Clinical Trials, Dartmouth, Emory, Gilles Frydman, Institute Of Medicine, Jamie Heywood, learning health system, Lynn Etheredge, Oncology, Paul Wallace, Transparency, Vanderbilt, Youtube

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Recent Comments

  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
  • Diane on A survey about clinical trial support groups: “I’d love to hear about clinical trials of the new weight-loss drugs believed to help people with diabetes and pre-diabetes” Mar 8, 12:15
  • Dave deBronkart on Lessons learned about hospice care: “I want to add some things I’ve learned in the years since you posted this. First, it should be noted…” Feb 20, 16:44

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