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Susannah Fox

I help people navigate health and technology.

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Going Viral Against HIV and STIs

December 10, 2010 By Susannah Fox 5 Comments

The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual […]

Filed Under: positive patterns Tagged With: AIDS.gov, cdc, GMHC, Harm Reduction Coalition, Hiv, HIV CIE, Kicesie Drew, Lee Aase, LoveHeals, Mayo Clinic, New York State, Pew Internet, Qpid.me, sexual health, STIs, susannah fox

The Future of Health: Robots, Enchanted Objects, and Networks

November 22, 2010 By Susannah Fox 37 Comments

I have seen the future of health and it’s networks (with apologies to Lincoln Steffens). Chronic disease is exploding in the U.S. The number of primary care health professionals is declining. Behavior change is difficult. But what are we going to do about it? Here are three ideas I’ve brought back from my travels: robots, […]

Filed Under: hc's problem list, patient networks, reforming hc Tagged With: altruism, connected health, David Rose, James Fowler, Joe Kvedar, Nicholas Christakis, Pew Internet, robot, susannah fox

The Decision Tree: How Better Health Can Scale

May 1, 2010 By Susannah Fox 3 Comments

“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to […]

Filed Under: health data, patient networks, policy issues, positive patterns Tagged With: 23andme, chronic disease, CureTogether, Decision Tree, digital divide, Genetics, getupandmove, Health Data, Hipaa, patientslikeme, Pew Research Center, susannah fox, Thomas Goetz

Stupid Cancer Show–Susannah Fox

December 10, 2009 By Susannah Fox Leave a Comment

Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show.  Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and blogger, and… me!

Filed Under: found on the net Tagged With: Blogger, cancer, Health Economist, Internet Researcher, Kahn, Matthew Zachary, Md Founder, Pew Internet, Show Host, Stupid, susannah fox

Participatory Medicine at PdF09: Can we get a do-over?

July 8, 2009 By Susannah Fox 12 Comments

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]

Filed Under: reforming hc, trends & principles Tagged With: Chris Schroeder, Craig Newmark, Disaggregation, Esther Dyson, Health Care Policy, Health Care Reform, Health Data Rights, Healthcentral, Jamie Heywood, Jerry Nadler, Openness, participatory medicine, Patient Data, patientslikeme, Personal Democracy Forum, pew internet project, susannah fox, Ted Eytan, Transparency

Mobile, social technology and the impact on health care–Susannah Fox

March 30, 2009 By Susannah Fox 1 Comment

Fard Johnmar interviewed me about internet adoption, the use of social technologies among minority groups, and my hope that e-patients’ “passion, knowledge, and ingenuity is brought forward no matter what else is planned for health care reform.”

Filed Under: demographics, news & gossip, trends & principles Tagged With: 1940, demographics, Displays, Fard, Health Care Reform, Information Revolution, Ingenuity, Internet Adoption, Knowledge, Minority Groups, Mobile Access, Mobile Technology, Mobility Group, Next Wave, Passion, pew internet project, Social Groups, Social Technology, susannah fox

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  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
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