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Susannah Fox

I help people navigate health and technology.

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altruism

Why people participate in clinical trials: altruism and access

October 30, 2017 By Susannah Fox 3 Comments

Painting of a red landscape with people climbing a dark arrow toward the sky

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes.  Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011):  By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]

Filed Under: featured commenters Tagged With: altruism, Clinical Trial Data, Clinical Trials, EHR, Regina Holliday

Just-in-time help

April 18, 2014 By Susannah Fox 3 Comments

One man helping another with his tie on the T by jsperber

Jodi Sperber snapped this photo of an older man helping a younger man with his tie on the T in Boston. I love it and shared it online (after getting Jodi’s permission). Roni Zeiger was one friend I sent it to and he replied, “Networks of microexperts ready to help each other: you never know where […]

Filed Under: beauty and wonder, peer-to-peer health care, social media Tagged With: altruism, Jodi Sperber, microexperts, Unmentionables

Are patients knights, knaves, or pawns?

July 15, 2011 By Susannah Fox 35 Comments

Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared.  The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these questions?! was my first thought. My second thought was […]

Filed Under: policy issues, reforming hc, trends & principles Tagged With: altruism, Institute Of Medicine, jama, Patient Centered Care, Pew Internet

Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.

May 25, 2011 By Susannah Fox 103 Comments

Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]

Filed Under: participatory research, peer-to-peer health care, trends & principles Tagged With: altruism, Children's Hospital Boston, Ian Eslick, Kevin Kelly, MIT Media Lab, patientslikeme, peer-to-peer healthcare, Pew Internet, Quantified Self, TuDiabetes

The Future of Health: Robots, Enchanted Objects, and Networks

November 22, 2010 By Susannah Fox 37 Comments

I have seen the future of health and it’s networks (with apologies to Lincoln Steffens). Chronic disease is exploding in the U.S. The number of primary care health professionals is declining. Behavior change is difficult. But what are we going to do about it? Here are three ideas I’ve brought back from my travels: robots, […]

Filed Under: hc's problem list, patient networks, reforming hc Tagged With: altruism, connected health, David Rose, James Fowler, Joe Kvedar, Nicholas Christakis, Pew Internet, robot, susannah fox

Building a Research Agenda for Participatory Medicine

October 11, 2010 By Susannah Fox 4 Comments

For this Grand Rounds, I chose David C. Kibbe & Joseph C. Kvedar’s article, “Building a Research Agenda for Participatory Medicine” (JoPM, Vol. 1, 2009). I will highlight two of their “ready-to-go” research questions: What is the role of coaching in sparking and supporting increased participation over time? What can we learn from research on […]

Filed Under: found on the net, peer-to-peer health care Tagged With: altruism, David Kibbe, James Fowler, Joe Kvedar, Legacy, Nicholas Christakis, QuitNet, Schroeder Institute, smoking cessation

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  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
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  • Dave deBronkart on Lessons learned about hospice care: “I want to add some things I’ve learned in the years since you posted this. First, it should be noted…” Feb 20, 16:44

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