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Susannah Fox

I help people navigate health and technology.

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Legacy

Building a Research Agenda for Participatory Medicine

October 11, 2010 By Susannah Fox 4 Comments

For this Grand Rounds, I chose David C. Kibbe & Joseph C. Kvedar’s article, “Building a Research Agenda for Participatory Medicine” (JoPM, Vol. 1, 2009). I will highlight two of their “ready-to-go” research questions: What is the role of coaching in sparking and supporting increased participation over time? What can we learn from research on […]

Filed Under: found on the net, peer-to-peer health care Tagged With: altruism, David Kibbe, James Fowler, Joe Kvedar, Legacy, Nicholas Christakis, QuitNet, Schroeder Institute, smoking cessation

The presence of patients changes public conversations about health care

October 4, 2010 By Susannah Fox 1 Comment

I’m attending a LOT of conferences this fall and over & over I am seeing the power of having patients in the room. e-Patient Connections was a wonderful and well-documented example (in blogs, on Twitter, plus the large in-person audience) as will be Health 2.0 San Francisco. But the one that turned my head around […]

Filed Under: pts as teachers Tagged With: #epatcon, #health2con, Connected, health 2.0, Legacy, Nicholas Christakis, patients included, Schroeder Institute, smoking cessation

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Recent Comments

  • Susannah Fox on The Promise of Patient-Led Research Integration: “Thank you, Lorraine! I will check back on the June meeting to see how the agenda is built out. I’m…” May 9, 17:59
  • Lorraine Johnson on The Promise of Patient-Led Research Integration: “This is a timely topic Susannah! I am serving on the planning committee of The National Academies for a workshop…” May 7, 18:52
  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37

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