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Susannah Fox

I help people navigate health and technology.

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Clinical Trial Data

Why people participate in clinical trials: altruism and access

October 30, 2017 By Susannah Fox 3 Comments

Why people participate in clinical trials: altruism and access

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes.  Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011):  By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]

Filed Under: featured commenters Tagged With: altruism, Clinical Trial Data, Clinical Trials, EHR, Regina Holliday

Clinical Trial Data Rights?

October 29, 2009 By Susannah Fox 4 Comments

“If you expose human beings to an experimental treatment, the public has a fundamental right to see the results of those experiments.” – Steven Nissen, chairman of the cardiology department at the Cleveland Clinic, quoted in The Sunlight Foundation’s account of Bray Patrick-Lake, an e-patient who was left with only questions after a clinical trial […]

Filed Under: found on the net Tagged With: Cardiology Department, Cleveland Clinic, Clinical Trial Data, Experimental Treatment, Fundamental Right, Human Beings, Patrick Lake, Steven Nissen, Sunlight Foundation

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popular posts

  • Blue Button's North Star
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Recent Comments

  • Susannah Fox on A taxonomy of health data: “Thank you, Gary! The conversation is never over and I'm grateful for your comment. (If you…” Feb 16, 06:15
  • Gary Wolf on A taxonomy of health data: “Really glad to read all these comments. Sara Riggare (http://www.riggare.se/) pointed me here after learning I'd missed it; she's been…” Feb 15, 18:58
  • Susannah Fox on A taxonomy of health data: “Wow! Thank you! Everyone, click through on Sweeney's Data Map when you have a moment -- lots…” Feb 7, 08:49

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  • Beauty and Wonder
  • Demographics
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  • Participatory Research
  • Peer-to-Peer Health Care
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