• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • health data
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

Clinical Trial Data

Why should anyone care about health data interoperability?

September 16, 2019 By Susannah Fox 6 Comments

Medical records closes at 5pm on Friday by Regina Holliday

A question I hear quite often, sometimes whispered, is: Why should anyone care about health data interoperability? It sounds pretty technical and boring. If I’m talking with a “civilian” (in my world, someone not obsessed with health care and technology) I point out that interoperable health data can help people care for themselves and their families […]

Filed Under: health data Tagged With: Amazon, Clinical Trial Data, FHIR, Health Data Rights, Hugo Campos, medical devices

Why people participate in clinical trials: altruism and access

October 30, 2017 By Susannah Fox 3 Comments

Painting of a red landscape with people climbing a dark arrow toward the sky

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes.  Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011):  By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]

Filed Under: featured commenters Tagged With: altruism, Clinical Trial Data, Clinical Trials, EHR, Regina Holliday

Clinical Trial Data Rights?

October 29, 2009 By Susannah Fox 3 Comments

“If you expose human beings to an experimental treatment, the public has a fundamental right to see the results of those experiments.” – Steven Nissen, chairman of the cardiology department at the Cleveland Clinic, quoted in The Sunlight Foundation’s account of Bray Patrick-Lake, an e-patient who was left with only questions after a clinical trial […]

Filed Under: found on the net Tagged With: Cardiology Department, Cleveland Clinic, Clinical Trial Data, Experimental Treatment, Fundamental Right, Human Beings, Patrick Lake, Steven Nissen, Sunlight Foundation

Before Footer

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Recent Comments

  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “I shared your question on Twitter and received a few ideas: 1) Vacuum nozzle with nylon over the end 2)…” Jan 30, 09:28
  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “Nancy, my experience in such situations is that prevention is the only answer: handle your pill dispensing in some kind…” Jan 27, 20:42
  • Nancy on Hack needed: Tiny pills, trembling hands: “What can an Elderly person do to pick up spilled pills on the floor at home. Is there such a…” Jan 27, 01:10

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

popular posts

  • Hack needed: Tiny pills, trembling hands
  • Caregiving is not a “career break”
  • Elegy for A. and M.
  • Parkinson's For One Day

Explore

Copyright Susannah Fox © 2023 · WordPress · Log in