• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • health data
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

FHIR

Why should anyone care about health data interoperability?

September 16, 2019 By Susannah Fox 6 Comments

Medical records closes at 5pm on Friday by Regina Holliday

A question I hear quite often, sometimes whispered, is: Why should anyone care about health data interoperability? It sounds pretty technical and boring. If I’m talking with a “civilian” (in my world, someone not obsessed with health care and technology) I point out that interoperable health data can help people care for themselves and their families […]

Filed Under: health data Tagged With: Amazon, Clinical Trial Data, FHIR, Health Data Rights, Hugo Campos, medical devices

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

Before Footer

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Recent Comments

  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
  • Diane on A survey about clinical trial support groups: “I’d love to hear about clinical trials of the new weight-loss drugs believed to help people with diabetes and pre-diabetes” Mar 8, 12:15
  • Dave deBronkart on Lessons learned about hospice care: “I want to add some things I’ve learned in the years since you posted this. First, it should be noted…” Feb 20, 16:44

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

popular posts

  • Hack needed: Tiny pills, trembling hands
  • Mystery solved. Again.
  • Conference organizers: Steal these ideas!
  • Artists of health care

Explore

Copyright Susannah Fox © 2023 · WordPress · Log in