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Susannah Fox

I help people navigate health and technology.

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Healthcentral

Healthcare Out Loud

February 25, 2011 By Susannah Fox 52 Comments

Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising even myself with some of what […]

Filed Under: patient networks Tagged With: #epatcon, ACOR, braintalk, E-Patient Dave, Healthcentral, patientslikeme, Patti Brennan, Pew Internet, Regina Holliday, Tom Ferguson

Participatory Medicine at PdF09: Can we get a do-over?

July 8, 2009 By Susannah Fox 25 Comments

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]

Filed Under: reforming hc, trends & principles Tagged With: Chris Schroeder, Craig Newmark, Disaggregation, Esther Dyson, Health Care Policy, Health Care Reform, Health Data Rights, Healthcentral, Jamie Heywood, Jerry Nadler, Openness, participatory medicine, Patient Data, patientslikeme, Personal Democracy Forum, pew internet project, susannah fox, Ted Eytan, Transparency

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popular posts

  • Hack needed: Tiny pills, trembling hands
  • Sunflowers turn to each other for help
  • Hypothesis generator
  • The new environment for health care decisions

Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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  • Demographics
  • Key People
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  • Trends and Principles

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