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Susannah Fox

I help people navigate health and technology.

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self-tracking

Acceptable uses of health data

November 23, 2020 By Susannah Fox 4 Comments

Cat peering out from under a computer keyboard

My former colleagues at the Pew Research Center continue to publish the best research on the impact of the internet on American society, bar none. My fandom extends to creating a fact sheet summarizing their recent surveys about Americans’ data worries. The results are indications about what people think and feel about the shifting technology […]

Filed Under: health data Tagged With: FasterCures, fitness, Pew Internet, Pew Research Center, self-tracking, social media, Tracking for Health

Data for health

November 4, 2014 By Susannah Fox Leave a Comment

Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]

Filed Under: health data, policy issues, trends & principles Tagged With: #data4health, Health Data, Health Data Rights, Office of the National Coordinator for Health Information Technology, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Who is ready to stand naked in front of the mirror of data?

July 29, 2014 By Susannah Fox Leave a Comment

In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]

Filed Under: health data, trends & principles Tagged With: california healthcare foundation, caregivers, chronic disease, Google Poetics, Health Data, Pew Research Center, QSPH, Quantified Self, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

The internet spins both ways

June 18, 2014 By Susannah Fox 2 Comments

Did you know some doctors once had a hand signal to warn their colleagues about internet-using patients? I talk about this and other health care history, plus a bit about the possible future (including some market opportunities), in an interview with Alex Howard: One study I cite in this segment of our conversation centers on […]

Filed Under: patient networks, peer-to-peer health care, social media, trends & principles Tagged With: Alex Howard, Health Datapalooza, peer-to-peer healthcare, self-tracking, Tracking for Health

Health Datapalooza IV

June 2, 2013 By Susannah Fox Leave a Comment

I will be part of a panel on self-tracking at the Health Datapalooza in Washington, DC, on Tuesday. My fellow panelists include Naveen Selvadurai, a co-founder of Foursquare; Roger Magoulas, the director of market research at O’Reilly Media; Jodi Daniel, director of the Office of Policy and Planning at the Office of the National Coordinator for Health Information Technology; and Abdul Shaikh of National Cancer Institute’s Health Communication and […]

Filed Under: positive patterns Tagged With: Health Datapalooza, Quantified Self, self-tracking, Tracking for Health

How do self-trackers handle loved ones who aren’t self-trackers?

April 22, 2013 By Susannah Fox 5 Comments

— intriguing question raised by Emily Kramer-Golinkoff on Twitter. I’d love to hear if people have experiences or advice to share in the comments. I wonder if the answer depends on how visible someone’s tracking is or whether they share their activity with their loved ones. If you are new to the idea of self-tracking, […]

Filed Under: trends & principles Tagged With: Quantified Self, self-tracking

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  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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