Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]
participatory research
How did we get here? And where are we going?
Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]
Quantified Self Public Health Symposium
On April 3, I was part of a symposium organized by Bryan Sivak, CTO, U.S. Department of Health and Human Services; Larry Smarr, Director, Calit2; and Gary Wolf, Director, Quantified Self Labs, where I presented the Pew Research Center’s findings on tracking for health. I uploaded my remarks in a separate post — this one is more of a “notes […]
Put down the clipboard and listen
Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]
Stanford Medicine X: Participatory research
Brett Alder and I spoke last night at Stanford Medical School’s Engage & Empower Me class: Today is a travel day for me, back to the East Coast, so any comments posted may wait in the queue — but please let me know what you think! I’ll post more about this event when I’m home, […]
A simcha, not a class, on participatory research
When Larry Chu, the executive producer of Stanford Medicine X, asked me to lead a “master class” at the 2013 meeting, I thought, “No, I’m still a student, not a master!” But I took a deep breath and thought about what I love best about my work, what I feel compelled to share with my […]
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