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Susannah Fox

I help people navigate health and technology.

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participatory research

Quantified Self Public Health

May 12, 2015 By Susannah Fox 11 Comments

Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]

Filed Under: key people, participatory research, research issues Tagged With: Don Norman, home health care hacks, Ian Eslick, maker movement, public service, QSPH, Quantified Self

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

Quantified Self Public Health Symposium

April 6, 2014 By Susannah Fox 13 Comments

Health Patch from Vital Connect

On April 3, I was part of  a symposium organized by Bryan Sivak, CTO, U.S. Department of Health and Human Services; Larry Smarr, Director, Calit2; and Gary Wolf, Director, Quantified Self Labs, where I presented the Pew Research Center’s findings on tracking for health. I uploaded my remarks in a separate post — this one is more of a “notes […]

Filed Under: key people, participatory research, pt/doc co-care, pts as teachers, research issues Tagged With: Gary Wolf, Pew Research Center, public service, QSPH, Quantified Self

Put down the clipboard and listen

February 7, 2014 By Susannah Fox 7 Comments

Regina Holliday Data Mote

Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Pete Seeger, Regina Holliday, Stanford Medicine X, The Walking Gallery, Tom Ferguson

Stanford Medicine X: Participatory research

February 7, 2014 By Susannah Fox 3 Comments

Brett Alder and I spoke last night at Stanford Medical School’s Engage & Empower Me class: Today is a travel day for me, back to the East Coast, so any comments posted may wait in the queue — but please let me know what you think! I’ll post more about this event when I’m home, […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Stanford Medicine X

A simcha, not a class, on participatory research

September 25, 2013 By Susannah Fox 6 Comments

When Larry Chu, the executive producer of Stanford Medicine X, asked me to lead a “master class” at the 2013 meeting, I thought, “No, I’m still a student, not a master!” But I took a deep breath and thought about what I love best about my work, what I feel compelled to share with my […]

Filed Under: participatory research Tagged With: flip teaching, Stanford Medicine X

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  • Susannah Fox on Crazy, crazy, LongCovid, obvious: ““I can tell you the names of all the women who reached out to respond.” That resonates. My own experience…” Jan 25, 13:11
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