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Susannah Fox

I help people navigate health and technology.

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participatory research

Research, writing, and the public conversation

December 19, 2012 By Susannah Fox 12 Comments

I’m crunching survey data nonstop these days, writing two reports to be published in January, so I’m not leaving my writing cave office very often. But before I went into quiet mode, I recorded a podcast with Fran Melmed and Carol Harnett, hosts of the CoHealth Checkup. They elicited some stories I haven’t told elsewhere […]

Filed Under: participatory research, trends & principles Tagged With: Pew Internet

Participatory Research

July 11, 2012 By Susannah Fox Leave a Comment

I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.

Filed Under: participatory research, research issues, social media, trends & principles Tagged With: e-patients, participatory research, Pew Internet, Twitter

Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.

May 25, 2011 By Susannah Fox 103 Comments

Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]

Filed Under: participatory research, peer-to-peer health care, trends & principles Tagged With: altruism, Children's Hospital Boston, Ian Eslick, Kevin Kelly, MIT Media Lab, patientslikeme, peer-to-peer healthcare, Pew Internet, Quantified Self, TuDiabetes

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Recent Comments

  • Susannah Fox on The Promise of Patient-Led Research Integration: “Thank you, Lorraine! I will check back on the June meeting to see how the agenda is built out. I’m…” May 9, 17:59
  • Lorraine Johnson on The Promise of Patient-Led Research Integration: “This is a timely topic Susannah! I am serving on the planning committee of The National Academies for a workshop…” May 7, 18:52
  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37

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