I’m going to teach a 90-minute class on participatory research at Stanford Medicine X in September, so I’m going to start blogging resources I plan to incorporate (or that simply inspire me). As always, I’d welcome suggestions, comments, and questions. First up, Kate Crawford’s Strata 2013 talk about “big data”:
participatory research
A mirror and a window
I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]
Research, writing, and the public conversation
I’m crunching survey data nonstop these days, writing two reports to be published in January, so I’m not leaving my writing cave office very often. But before I went into quiet mode, I recorded a podcast with Fran Melmed and Carol Harnett, hosts of the CoHealth Checkup. They elicited some stories I haven’t told elsewhere […]
Participatory Research
I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.
Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.
Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]
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