I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]
participatory research
Public service researcher
I think of myself as a public service researcher. The Pew Charitable Trusts and the California HealthCare Foundation provide the funds for the work I do and, in turn, I do everything I can to inject the findings into the public conversation: publish reports and data sets online, for free; talk to reporters and bloggers […]
On listening, as a tool
My friend Wendy Sue Swanson, MD, delivers a passionate argument for listening more than talking online and, in that way, seeing “where myth is being created” so she can better infuse her own communications with facts. I couldn’t agree more, so I’m adding it to my list of “participatory research” resources for my Stanford Medicine […]
Kate Crawford on algorithmic illusions
I’m going to teach a 90-minute class on participatory research at Stanford Medicine X in September, so I’m going to start blogging resources I plan to incorporate (or that simply inspire me). As always, I’d welcome suggestions, comments, and questions. First up, Kate Crawford’s Strata 2013 talk about “big data”:
A mirror and a window
I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]
Research, writing, and the public conversation
I’m crunching survey data nonstop these days, writing two reports to be published in January, so I’m not leaving my writing cave office very often. But before I went into quiet mode, I recorded a podcast with Fran Melmed and Carol Harnett, hosts of the CoHealth Checkup. They elicited some stories I haven’t told elsewhere […]
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