One of my favorite structures in Bilbao is the Campo Volantin footbridge, designed by Santiago Calatrava. I went out of my way to walk over it many times while I was visiting that beautiful city. Approaching it was a visual treat and there were always musicians playing on it, an aural treat. But once you […]
participatory research
One voice, many inflections: HIV clinical trial communications
I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]
Public service researcher
I think of myself as a public service researcher. The Pew Charitable Trusts and the California HealthCare Foundation provide the funds for the work I do and, in turn, I do everything I can to inject the findings into the public conversation: publish reports and data sets online, for free; talk to reporters and bloggers […]
On listening, as a tool
My friend Wendy Sue Swanson, MD, delivers a passionate argument for listening more than talking online and, in that way, seeing “where myth is being created” so she can better infuse her own communications with facts. I couldn’t agree more, so I’m adding it to my list of “participatory research” resources for my Stanford Medicine […]
Kate Crawford on algorithmic illusions
I’m going to teach a 90-minute class on participatory research at Stanford Medicine X in September, so I’m going to start blogging resources I plan to incorporate (or that simply inspire me). As always, I’d welcome suggestions, comments, and questions. First up, Kate Crawford’s Strata 2013 talk about “big data”:
A mirror and a window
I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]
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