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Susannah Fox

I help people navigate health and technology.

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participatory research

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

Public service researcher

May 1, 2013 By Susannah Fox Leave a Comment

Vintage nurse recruitment poster: For your country's sake today. For your own sake tomorrow.

I think of myself as a public service researcher. The Pew Charitable Trusts and the California HealthCare Foundation provide the funds for the work I do and, in turn, I do everything I can to inject the findings into the public conversation: publish reports and data sets online, for free; talk to reporters and bloggers […]

Filed Under: participatory research, public Q&A, research issues, social media Tagged With: california healthcare foundation, Pew Charitable Trusts, Pew Research Center, public service

On listening, as a tool

April 8, 2013 By Susannah Fox 2 Comments

My friend Wendy Sue Swanson, MD, delivers a passionate argument for listening more than talking online and, in that way, seeing “where myth is being created” so she can better infuse her own communications with facts. I couldn’t agree more, so I’m adding it to my list of “participatory research” resources for my Stanford Medicine […]

Filed Under: net-friendly docs, participatory research Tagged With: participatory research, Wendy Sue Swanson

Kate Crawford on algorithmic illusions

April 4, 2013 By Susannah Fox 25 Comments

I’m going to teach a 90-minute class on participatory research at Stanford Medicine X in September, so I’m going to start blogging resources I plan to incorporate (or that simply inspire me). As always, I’d welcome suggestions, comments, and questions. First up, Kate Crawford’s Strata 2013 talk about “big data”:

Filed Under: participatory research Tagged With: participatory research, Stanford Medicine X

A mirror and a window

February 19, 2013 By Susannah Fox 9 Comments

Airplane window view of a city by A30_Tsitika

I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: participatory research, Pew Internet, Pew Research Center

Research, writing, and the public conversation

December 19, 2012 By Susannah Fox 12 Comments

I’m crunching survey data nonstop these days, writing two reports to be published in January, so I’m not leaving my writing cave office very often. But before I went into quiet mode, I recorded a podcast with Fran Melmed and Carol Harnett, hosts of the CoHealth Checkup. They elicited some stories I haven’t told elsewhere […]

Filed Under: participatory research, trends & principles Tagged With: Pew Internet

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