At yesterday’s A Healthy America event, I met Yanique Redwood, President & CEO of the Consumer Health Foundation. In researching more about her work, I found that she uses a qualitative research method called PhotoVoice, described as “participatory photography for social change.” Check out some of the projects enabled by PhotoVoice: The Dirty Truth Campaign in Atlanta, […]
participatory research
The data-driven future of…
Read this quote from Owen Thomas’s piece about Jeff Bezos and his purchase of The Washington Post, but insert “health care” in place of “media”: In the tech world—the world where Bezos made his fortune—it’s taken for granted that one should use data about how people use a product to make that product better and […]
Participatory research: it’s not everything, it’s the only thing
One of my favorite structures in Bilbao is the Campo Volantin footbridge, designed by Santiago Calatrava. I went out of my way to walk over it many times while I was visiting that beautiful city. Approaching it was a visual treat and there were always musicians playing on it, an aural treat. But once you […]
One voice, many inflections: HIV clinical trial communications
I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]
Public service researcher
I think of myself as a public service researcher. The Pew Charitable Trusts and the California HealthCare Foundation provide the funds for the work I do and, in turn, I do everything I can to inject the findings into the public conversation: publish reports and data sets online, for free; talk to reporters and bloggers […]
On listening, as a tool
My friend Wendy Sue Swanson, MD, delivers a passionate argument for listening more than talking online and, in that way, seeing “where myth is being created” so she can better infuse her own communications with facts. I couldn’t agree more, so I’m adding it to my list of “participatory research” resources for my Stanford Medicine […]
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