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Susannah Fox

I help people navigate health and technology.

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participatory research

Put down the clipboard and listen

February 7, 2014 By Susannah Fox 7 Comments

Regina Holliday Data Mote

Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Pete Seeger, Regina Holliday, Stanford Medicine X, The Walking Gallery, Tom Ferguson

Stanford Medicine X: Participatory research

February 7, 2014 By Susannah Fox 3 Comments

Brett Alder and I spoke last night at Stanford Medical School’s Engage & Empower Me class: Today is a travel day for me, back to the East Coast, so any comments posted may wait in the queue — but please let me know what you think! I’ll post more about this event when I’m home, […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Stanford Medicine X

A simcha, not a class, on participatory research

September 25, 2013 By Susannah Fox 6 Comments

When Larry Chu, the executive producer of Stanford Medicine X, asked me to lead a “master class” at the 2013 meeting, I thought, “No, I’m still a student, not a master!” But I took a deep breath and thought about what I love best about my work, what I feel compelled to share with my […]

Filed Under: participatory research Tagged With: flip teaching, Stanford Medicine X

Learning about PhotoVoice

September 17, 2013 By Susannah Fox Leave a Comment

A man in Tanzania sorts his medication while his mother looks on.

At yesterday’s A Healthy America event, I met Yanique Redwood, President & CEO of the Consumer Health Foundation. In researching more about her work, I found that she uses a qualitative research method called PhotoVoice, described as “participatory photography for social change.” Check out some of the projects enabled by PhotoVoice: The Dirty Truth Campaign in Atlanta, […]

Filed Under: participatory research, pts as teachers

The data-driven future of…

September 8, 2013 By Susannah Fox 10 Comments

Read this quote from Owen Thomas’s piece about Jeff Bezos and his purchase of The Washington Post, but insert “health care” in place of “media”: In the tech world—the world where Bezos made his fortune—it’s taken for granted that one should use data about how people use a product to make that product better and […]

Filed Under: participatory research Tagged With: #whatifhc

Participatory research: it’s not everything, it’s the only thing

July 15, 2013 By Susannah Fox 5 Comments

Campo Volantin footbridge in Bilbao

One of my favorite structures in Bilbao is the Campo Volantin footbridge, designed by Santiago Calatrava. I went out of my way to walk over it many times while I was visiting that beautiful city. Approaching it was a visual treat and there were always musicians playing on it, an aural treat. But once you […]

Filed Under: beauty and wonder, participatory research Tagged With: Bilbao, Diana Forsythe, E-Patient Dave

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