• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • health data
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

Facial Paralysis

The impact of the internet on one man’s life

March 13, 2012 By Susannah Fox 9 Comments

Nell Minow is a movie critic and corporate governance watchdog (yep, both). She and I were seated together at a luncheon a few weeks ago, part of a weekend-long meeting on leadership. We had just watched the movie, Act of Valor, and began talking about different kinds of leaders and heroes — those who seek […]

Filed Under: e-patient stories, internet geology Tagged With: Americans With Disabilities Act, bulletin boards, Facial Paralysis, Hearing Loss, Indomitable Spirit, Moebius Syndrome, Navy Seals, Nell Minow, Rare Disease

E-patient Interview: Keith Schorsch–Susannah Fox

June 6, 2008 By Susannah Fox 7 Comments

When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s the clue that saved Keith. Keith turned his experience into a consumer […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Baby Boomers Age, Consumer Survey, Facial Paralysis, Finding Health, Health And Wellness, Health Care Decisions, Health Consumer, Health Consumers, Health Experience, Huge Wave, Lyme Disease, Passive Role, Patient Interview, Patient Story, Personal Context, Personal Health Decisions, Schorsch, Skeletal Pain, Unmet Health, Wellness Issues

Before Footer

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Recent Comments

  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38
  • Rajiv Mehta on Caregiver starter pack: “I know how important it is that the initial help is measured and focused — enough to be helpful immediately,…” Jan 31, 11:34
  • Susannah Fox on Caregiver starter pack: “Yes! Creating a habit of taking breaks, or putting on your own oxygen mask, is key. I realized that the…” Jan 31, 08:46

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

popular posts

  • Caregiver starter pack
  • Hack needed: Tiny pills, trembling hands
  • Engage with Grace
  • A taxonomy of health data

Explore

Copyright Susannah Fox © 2023 · WordPress · Log in