A 2018 national survey by Hopelab and Well Being Trust uncovered an astonishing finding: Fully half (51%) of 18- to 22-year-olds say they have tried to find people online with health concerns similar to their own. That is double the percentage of teens (14- to 17-year-olds) who reported doing this activity and it’s much higher […]
Writing
Paging fans of Dr. Google
Every few weeks someone posts some version of “Don’t confuse your Google search with my medical degree.” It appears on Facebook, on Twitter, on coffee mugs, and on signs in doctor’s offices. Today I found out that there’s a doctor who sings about it in English and in Swedish. Here’s one fabulous reply, written by Trisha […]
Art and data
Jacqueline von Edelberg created a striking installation on the lawn of the U.S. Capitol on Monday, March 25. Each strip of cloth represents one child killed by a gun in the U.S. since the Sandy Hook massacre in 2012, 13,000 in all. The installation served as a backdrop for a rally commemorating the one year […]
Health Datapalooza X
This week is the 10th anniversary Health Datapalooza. It’s a milestone worth celebrating. In 2010, I attended what was then called the Community Health Data Forum at the Institute of Medicine. I posted a preview: Making Health Data Sing (Even If It’s a Familiar Song) and below are my notes from what we knew even […]
Public Q&A: How to connect teens with health peers
In the spirit of Public Q&A, I am sharing a question I received from someone who helps run outreach and support programs for a disease-focused nonprofit: “In your research did you learn about what mode and types of connecting teens preferred? Did any teens express wishes for something online that they couldn’t find in terms of connecting with peers?” Essentially, […]
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