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Susannah Fox

I help people navigate health and technology.

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ME/CFS

Whose needs are not met?

September 8, 2021 By Susannah Fox 19 Comments

Questions marks painted on pavement

For years I tried to find ways to explain the particular challenges facing people with undiagnosed and rare health conditions. I decided to create a visualization showing the wide spectrum of people’s health needs and I’d like some feedback on it. Imagine a horizontal line. At the far left side are the people whose needs […]

Filed Under: peer-to-peer health care Tagged With: ALS, Alzheimers, chronic pain, cystic fibrosis, eating disorders, LongCovid, Matthew Trowbridge, ME/CFS, menopause, MIT Press, myalgic encephalomyelitis, peer health innovation, Rare Disease

Unrest

January 8, 2018 By Susannah Fox 1 Comment

Jennifer Brea, director of the film Unrest, lies in bed with EEG leads on her head

The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]

Filed Under: e-patient stories, key people, patient networks, peer-to-peer health care, policy issues Tagged With: chronic fatigue syndrome, Jennifer Brea, Marfan syndrome, ME/CFS, myalgic encephalomyelitis, peer-to-peer healthcare, Rare Disease, rare diseases

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Recent Comments

  • Rajiv Mehta on Rebel Health: “Congratulations! A long time in the works, but you’ve learned so much more since you left Pew that will have…” Jun 2, 12:01
  • Richard Sass on Rebel Health: “I can hardly wait to include Rebel Health within the “WellBeing Collaborative” Origins mHealth is gestating. Perhaps Origins birth will…” Jun 2, 11:10
  • Susannah Fox on Rebel Health: “Ding Ding Ding! We have a winner!! Billy Idol reference #1 from my dear pal Bill. Knew I could count…” Jun 2, 10:23

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