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Susannah Fox

I help people navigate health and technology.

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chronic pain

Whose needs are not met?

September 8, 2021 By Susannah Fox 19 Comments

Questions marks painted on pavement

For years I tried to find ways to explain the particular challenges facing people with undiagnosed and rare health conditions. I decided to create a visualization showing the wide spectrum of people’s health needs and I’d like some feedback on it. Imagine a horizontal line. At the far left side are the people whose needs […]

Filed Under: peer-to-peer health care Tagged With: ALS, Alzheimers, chronic pain, cystic fibrosis, eating disorders, LongCovid, Matthew Trowbridge, ME/CFS, menopause, MIT Press, myalgic encephalomyelitis, peer health innovation, Rare Disease

Weekend update

January 17, 2015 By Susannah Fox 10 Comments

Susannah Fox's Weekend Update - credit: Andre Blackman

Last Saturday I posted a round-up of what caught my eye during the week and my friend Andre Blackman (@mindofandre) created this awesome graphic: Thus encouraged, here’s another round of what I favorited on Twitter this week: Nancy Stein (@SeniorityMatter) shared an opinion piece by Rob Lowe about long-term care planning. He’s promoting his partnership […]

Filed Under: key people, social media Tagged With: chronic pain, cystic fibrosis, Duchenne, long-term care, may I suggest, Open Access, Quantified Self, wearables

Health Education vs. Outcomes–Susannah Fox

June 28, 2007 By Susannah Fox Leave a Comment

The Pew Internet Project has found that the internet has a significant impact on decisions about which school to attend, but it does not play a big role in other “major life moments.” Is there something similar in health care? Are there conditions and diseases which are more likely to yield to an e-patient’s ability to change the outcome? Is it enough that e-patients are more informed and feel empowered by information, or should we expect more?

Filed Under: reforming hc Tagged With: cancer, chronic pain, e-patient, patient networks, pregnancy

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  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
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