Lovely capture by Alex Howard (@digiphile) on Instagram. The book, by Lee Rainie and Barry Wellman, opens with an unforgettable health-related story — how a community rallied around a beloved (and very networked) couple. It’s a must-read for those who crave evidence and new insights about our changing communications landscape.
Archives for May 2012
Why fieldwork in patient communities is essential
Thanks to a tweet from Brian Ahier, I’m re-reading Internet Health Resources from 2002. It was the first time we’d done extensive online fieldwork in addition to national phone surveys, yielding stories like this one: One mother told how, when she suspected that her daughter had a serious respiratory infection called RSV, she looked it […]
“Gradually, then suddenly.”
– Tim O’Reilly, quoting from Ernest Hemingway’s The Sun Also Rises: “How did you go bankrupt?” “Two ways. Gradually, then suddenly.” Tim writes: “I love lines from literature that crystallize a notion, and then become tools in your mental toolbox. This is one of those. Keep it handy, because you’re going to see ‘gradually, then […]
“Instead of being a futurist, you want to be a nowist.”
“By being agile and having your antennas out, you can react when you see the trend starting, rather than relying on these multiyear, multimillion-dollar analyses on the future of X. Instead of being a futurist, you want to be a nowist.” – Joi Ito in Wired
Five years on
Five years ago this month I wrote my first blog post for e-patients.net: Chemotherapy Fog Is No Longer Ignored as Illusion. Back then the blog was a sandbox, a way for those who knew and loved Tom Ferguson to continue the conversations we’d had with him, on the blog he’d launched just before he died. […]
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