• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • health data
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

Archives for January 2018

Letter to shareholders

January 29, 2018 By Susannah Fox 28 Comments

Susannah Fox in the audience at a public event at the U.S. Dept of Health and Human Services

For tax purposes, I recently added up all the various sources of income I’d received in 2017. It was a real hodge-podge of a year since I left my appointment at the U.S. Department of Health and Human Services (HHS) and started working on my own projects again. This exercise brought home the lesson that […]

Filed Under: key people, positive patterns Tagged With: Cambia Health Solutions, caregivers, family, Hhs, Hope for Henry, HopeLab Foundation, Laurie Strongin, Margaret Laws, Mark Ganz, peer-to-peer healthcare, Warren Buffett

A good death

January 19, 2018 By Susannah Fox 28 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we could have hoped for, but it was still hard to watch. I spent most of what […]

Filed Under: end of life, peer-to-peer health care Tagged With: cancer, end of life, family, Family Caregivers

Unrest

January 8, 2018 By Susannah Fox 1 Comment

Jennifer Brea, director of the film Unrest, lies in bed with EEG leads on her head

The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]

Filed Under: e-patient stories, key people, patient networks, peer-to-peer health care, policy issues Tagged With: chronic fatigue syndrome, Jennifer Brea, Marfan syndrome, ME/CFS, myalgic encephalomyelitis, peer-to-peer healthcare, Rare Disease, rare diseases

Before Footer

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Recent Comments

  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

popular posts

  • Caregiver starter pack
  • Engage with Grace
  • Hack needed: Tiny pills, trembling hands
  • The Value of Data

Explore

Copyright Susannah Fox © 2023 · WordPress · Log in