The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]
Archives for May 2013
Work on stuff that matters: health care edition
That’s a Tim O’Reilly maxim, not original to me. I quoted it, exasperated, after reading this article: The biggest merger you didn’t hear about yesterday If you haven’t read it yet, please do. It is damn good and damn right. Sorry. It’s just that I feel like the frog in the pot who just saw the […]
Have you ever wondered what it’s like to have Cystic Fibrosis?
Erin Moore, the mom-warrior who created that video, also wrote this essay: Are patients a distraction? I think not… Watch, read, cry, be inspired. I sure am.
“Learning is a lot more fun—and a lot more effective—when it’s social. Tweet & NEVER eat alone.”
— Mike Nelson, in one of 17 “nuggets” of wisdom he tweeted today. Click through on all the links. They’re worth your time.
Thank you, Susannah Fox (the other one, that is)
One year ago this week I ported over five years’ worth of posts from e-patients.net and launched this blog. But I have never shared the story behind the susannahfox.com domain name (and there is a story). Here it is:
Public Q&A: How should a clinician measure patients’ use of online health resources?
Here’s a question I received recently from a clinician I met at a conference. He had expressed interest in the Pew Research Center’s health and technology surveys and was now following up: We are in the process of revising our patient forms and this may be a good time to add 1-2 questions that might […]
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