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Susannah Fox

I help people navigate health and technology.

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Archives for October 2008

Participatory Medicine, Connected Health–Susannah Fox

October 30, 2008 By Susannah Fox 14 Comments

The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008.  I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]

Filed Under: trends & principles Tagged With: data, e-patients, participatory medicine

Connected Health Symposium 2008–Susannah Fox

October 24, 2008 By Susannah Fox 4 Comments

An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project‘s latest data on social media and how the participatory Web is creating opportunities for participatory medicine. Danny Sands and “e-Patient Dave” deBronkart will […]

Filed Under: general

41% of Adults are “Activated Patients”

October 21, 2008 By Susannah Fox 4 Comments

Two sets of hands sort pills into a pillbox

The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter.   The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).

Filed Under: demographics, research issues Tagged With: data, e-patient, survey

Patient Power: Andrew Schorr–Susannah Fox

October 6, 2008 By Susannah Fox 6 Comments

Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Andrew Schorr, Better Health, Bladder Cancer, Brain Tumor, Cnn, Common Goal, Generous Support, Health Care Professionals, Health Concerns, Lung Cancer, M D Anderson, Medical Centers, Myomectomy, Patient Comments, Patient Power, Renowned Experts, Team Approach, Trusera, Uterine Fibroids, Young Adults

Response to Tara Parker-Pope’s “You’re Sick. Now What?”–Susannah Fox

October 3, 2008 By Susannah Fox 3 Comments

Christine Gray’s comments on the New York Times open thread merit a separate post (updated on 10/7/2008): Five years ago, when many pediatric hospitals were unaware of or unwilling to acknowledge the capacities of online medical support groups, my thirteen-year-old daughter was diagnosed with a subset of a rare cancer (sarcoma or soft tissue cancer). […]

Filed Under: e-patient stories

New York Times Health Section

October 1, 2008 By Susannah Fox 8 Comments

The New York Times published an amazing array of health articles yesterday, each one of which is worthy of a discussion on this blog (and not just because we were mentioned in this one). But I also want to take a minute to appreciate the entire online Health section of the Times, which consistently grabs […]

Filed Under: news & gossip

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