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Susannah Fox

I help people navigate health and technology.

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Archives for February 2009

Rare Disease Day 2009–Susannah Fox

February 28, 2009 By Susannah Fox 7 Comments

Today is Rare Disease Day 2009. Join us in recognizing the reality of rare disorders and celebrating the beauty in the eyes of children living with rare disease and those who have lost their lives.

Filed Under: general Tagged With: rare diseases

Why Technology is No Longer Optional in Public Health–Susannah Fox

February 24, 2009 By Susannah Fox 1 Comment

Andre Blackman has posted an important essay about mobile tech’s potential in health care — and the imperative to not miss this cluetrain.

Filed Under: found on the net Tagged With: mobile

Ted Eytan’s Twitterview–Susannah Fox

February 13, 2009 By Susannah Fox Leave a Comment

“Ask your patients what they use, what they want to use, and how you can be there for them.” — Ted Eytan‘s advice to IT-reluctant health professionals in a Twitterview with Diario Médico.

Filed Under: found on the net Tagged With: Ted Eytan, Twitter

Twitter, Facebook, and e-patients–Susannah Fox

February 13, 2009 By Susannah Fox 10 Comments

Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share information—reveals their affinity for mobile, untethered and social opportunities for […]

Filed Under: trends & principles Tagged With: Facebook, Twitter

Raise Awareness of the Reality of Rare Disorders–Susannah Fox

February 4, 2009 By Susannah Fox 15 Comments

Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on Feb. 28, 2009, is an opportunity to change that.

Filed Under: patient networks Tagged With: NORD, rare diseases

“Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT–Susannah Fox

February 2, 2009 By Susannah Fox 4 Comments

Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.

Filed Under: found on the net Tagged With: diabetes, diabetesmine, e-patients

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

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