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Susannah Fox

I help people navigate health and technology.

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Archives for December 2010

“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy–Susannah Fox

December 28, 2010 By Susannah Fox 26 Comments

Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D.,  last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s […]

Filed Under: shared decision making, Why PM Tagged With: Alice Tolbert Coombs, Jessie Gruman, Journal of Participatory Medicine, Mayo Transform, participatory medicine, patientslikeme, Paul Wicks, Pew Internet

Cancer 2.0

December 13, 2010 By Susannah Fox 9 Comments

President's Cancer Panel Agenda for a meeting December 14 2010

Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The Pew Internet Project‘s latest report on health and health care, Cancer […]

Filed Under: patient networks, trends & principles Tagged With: cancer, Pew Internet

Going Viral Against HIV and STIs

December 10, 2010 By Susannah Fox 5 Comments

The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual […]

Filed Under: positive patterns Tagged With: AIDS.gov, cdc, GMHC, Harm Reduction Coalition, Hiv, HIV CIE, Kicesie Drew, Lee Aase, LoveHeals, Mayo Clinic, New York State, Pew Internet, Qpid.me, sexual health, STIs, susannah fox

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

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