“…and to make this muddled world a better place for those who will live in it after we are gone?” – Winston Churchill. I bike past this statue every day on the way to and from work and stopped the other day to read the plaque. One foot is on U.S. soil, the other on […]
Archives for July 2012
The 19th International AIDS Conference, held this week in Washington, DC, included a session entitled, “The State of New Media and HIV,” hosted by AIDS.gov. My role on the panel was a familiar one – to present the Pew Internet Project’s latest research about mobile, social technologies and their impact on health and health care. […]
– the line I added to my speech on the train up to Philadelphia last Saturday. I wanted to convey to the people attending the 2012 Moebius Syndrome Conference that I admire them and see them as pioneers of peer-to-peer health care. My full post is on e-patients.net: Health Care Hackers
“People who think that people with disabilities can’t do anything, that we’re fragile and in need. People who think we are inspirational and think we can fly to the moon if we wanted to. People who treat us like everyone else, who know that we’ll ask for help if we need it but otherwise we’re […]
I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.
– Rosie Redfield on how to pursue good science (vs. the other way). It’s a good mantra for me this week, writing about caregivers (I had a theory that they use the internet differently and I was right, but not as right as I’d hoped to be) and formulating the next Pew Internet health survey […]