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Susannah Fox

I help people navigate health and technology.

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Archives for February 2013

Rare Disease Day 2013

February 28, 2013 By Susannah Fox 5 Comments

People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on e-patients.net: Rare Disease Day 2013: Help Spread Awareness Read the Pew Research Center’s report featuring insights from people living with rare conditions: Peer-to-peer […]

Filed Under: key people, peer-to-peer health care Tagged With: National Organization For Rare Disorders, Rare Disease, Wendy White

Tell all the truth but tell it slant

February 26, 2013 By Susannah Fox 5 Comments

Scanning tweets from the current Institute of Medicine event (#iomPwP) brought a poem to mind: Tell all the Truth but tell it slant — Success in Circuit lies Too bright for our infirm Delight The Truth’s superb surprise   As Lightning to the Children eased With explanation kind The Truth must dazzle gradually Or every […]

Filed Under: beauty and wonder, key people Tagged With: Dave Clifford, Emily Dickinson, Institute Of Medicine, truth

How many people use “ask a doctor” sites?

February 25, 2013 By Susannah Fox 7 Comments

Here’s a question I received that I thought was worth a public answer: How many people go online to seek a doctor’s opinion about something, such as on an “ask a doctor” site? Pew Research has not asked a survey question that specifically measures that activity, but we have something pretty close, based on our […]

Filed Under: peer-to-peer health care, public Q&A, trends & principles

“A jumbo jet a day” – who said it?

February 22, 2013 By Susannah Fox 41 Comments

View of clouds and an airplane wing

I’m looking into public perceptions of patient safety as a possible research topic and have run up against a question I can’t answer. Can you help?

Filed Under: hc's problem list, policy issues Tagged With: AHRQ, Institute Of Medicine, patient safety, To Err is Human

A mirror and a window

February 19, 2013 By Susannah Fox 9 Comments

Airplane window view of a city by A30_Tsitika

I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We hold up a mirror to society, reflecting back the current state of all sorts of things, like marriage, […]

Filed Under: participatory research, peer-to-peer health care, research issues, social media Tagged With: participatory research, Pew Internet, Pew Research Center

What if health care dreams started coming true?

February 17, 2013 By Susannah Fox 8 Comments

Some new “What if health care…?” dreams are circulating and since they are specifically related to my research, I have to call them out. First, check out this article by Eugene Borukhovich about the power of DIY health care tools and self-tracking — and how we need to move toward DIT (do it together): A new […]

Filed Under: peer-to-peer health care Tagged With: #whatifhc, peer-to-peer healthcare, tracking

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