Wendy White

Rare Disease Day 2013

February 28, 2013 By Susannah Fox 5 Comments

People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on e-patients.net: Rare Disease Day 2013: Help Spread Awareness Read the Pew Research Center’s report featuring insights from people living with rare conditions: Peer-to-peer […]

Kevin Lawrence on Networkers pool resources: “Thank you, Casey! I know Charlie second-hand, through Gilles but we’ve never connected. I’ll reach out!” May 26, 09:56
Mighty Casey on Networkers pool resources: “Wow, Kevin, you’re juggling a lot! Glad you’ve found some resources/connections, would definitely say that #btsm is a good source…” May 26, 09:31
Susannah Fox on Networkers pool resources: “Kevin, I’m at a loss for words at the depth of the insights and poignancy you shared here. Let’s begin…” May 26, 08:32