Wendy White

Rare Disease Day 2013

February 28, 2013 By Susannah Fox 5 Comments

People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on e-patients.net: Rare Disease Day 2013: Help Spread Awareness Read the Pew Research Center’s report featuring insights from people living with rare conditions: Peer-to-peer […]

Quynh Tran on What can we do by Tuesday?: “I appreciate “What can we do by Tuesday?” It is: * specific * relatable * practical Balancing a disease while…” Oct 20, 14:30
Susannah Fox on What can we do by Tuesday?: “This post was partially inspired by the incredible popularity, year after year, of another “origin story” post: “A jumbo jet…” Oct 20, 12:10
Susannah Fox on Peer health playbooks: “Since my blog is my outboard memory, here is a wonderful playbook-like service that Lisa Suennen shared with me: Undivided…” Oct 16, 10:01

Rare Disease Day 2013

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