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Susannah Fox

I help people navigate health and technology.

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Archives for February 2015

Rare Disease Day

February 28, 2015 By Susannah Fox Leave a Comment

Looking down from the top of the NIH Clinical Center atrium

Today is Rare Disease Day, when we honor the millions of people who teach us what it’s like to live at the edges of the known world of medicine.

Filed Under: positive patterns, pt/doc co-care Tagged With: Alpha Geek, Amy Marcus, Francis Collins, NIH, Rare Disease, rare diseases

What if?

February 20, 2015 By Susannah Fox 18 Comments

Times Square

Quick explanation: I tweeted “What if this Pew Research GIF was played on a loop in Times Square?” and my friend Mike Lee made it happen (in our Photoshopped dreams). What if every conference displayed it on a screen, so that every public conversation in every industry was framed by the context of the coming […]

Filed Under: demographics Tagged With: #whatifhc, AARP, aging, Ai-jen Poo, Caring Across Generations, demographics, National Domestic Workers Alliance, Pew Research Center

What health care can learn from Mike Mulligan and his steam shovel

February 13, 2015 By Susannah Fox 8 Comments

Google is upgrading health search…again. In 2010, I was inspired by Animal Farm to write that Google saw some health sites as more equal than others. This time I turned to Mike Mulligan and his Steam Shovel, by Virginia Lee Burton.

Filed Under: positive patterns, reforming hc, trends & principles Tagged With: #bcsm, #whatifhc, Apple, cystic fibrosis, Erin Moore, Google, HealthKit, Hugo Campos, IBM Watson, Iodine, multiple sclerosis, patientslikeme, Quantified Self, Rare Disease, Smart Patients, Stanford Medicine X

Slow down

February 6, 2015 By Susannah Fox 4 Comments

Illustration of a person looking up at a bird feeding its baby in a nest while people rush around below. Words on a bench read: Slow Down

Juhan Sonin and his team at Involution Studios capture essential health messages in cards — actual, physical cards that you can stack in a deck or lay out across a table. The front is an arresting image and the back lists evidence and tips. The cards are tactile, delightful artifacts of an ongoing conversation that Invo […]

Filed Under: beauty and wonder Tagged With: Fahd Butt, Health Axioms, Juhan Sonin, peer-to-peer healthcare, poetry

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

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