There are Seekers, Networkers, Solvers, and Champions all over the world who are putting patient-led innovation to work. Invest in them, partner with them, find ways to boost their signal within your own organization.
For example:
- Design With Us was co-founded by a teen with a limb difference and her mother to create opportunities for disabled young people to learn design and manufacturing skills: https://www.designwithus.org
- The Dinner Party helps grieving young adults (20s to early 40s) connect with each other for support. The platform screens, trains and supports peer hosts to convene groups of people with similar experiences: https://www.thedinnerparty.org
- Disability at Home is a collection of adaptations that people with disabilities and caregivers in the U.S. use to make the world more accessible: https://www.disabilityathome.org
- Equip is an eating disorder recovery company that I advise. Their at-home care delivery includes trained peer mentors for both the patient and their family members: https://equip.health
- InquisitHealth is a mentoring-as-a-service company that connects trained peers with people who are living with chronic conditions: https://www.inquisithealth.com
- Grapevine Health works with Black and Latinx health care providers to tailor health messages for their communities: https://www.grapevinehealth.com
- Genetic Alliance offers training, education, community engagement, and research services to individuals, families, and patient groups: https://geneticalliance.org
- Hive Networks, another company I am proud to advise, builds online collaborative workspaces for clinicians, researchers, and patients: https://www.hivenetworks.com
- I AM ALS is a patient-led movement centered on ALS but with a wider target: Helping everyone to participate in organizing for change: https://organizingplaybook.org
- InquisitHealth is a mentoring-as-a-service company that connects trained peers with people who are living with chronic conditions: https://www.inquisithealth.com
- Mental Health America’s Center for Peer Support provides training and certification for people who want to use their lived experience to help others: https://www.mhanational.org/center-peer-support
- Patient Innovation features medical and assistive device inventions and adaptations from around the world: https://patient-innovation.com
- Peers for Progress provides consulting and collaboration services to researchers, community organizations, and health care systems: http://peersforprogress.org
- Periwinkle is a peer-to-peer community and resource for perimenopause (the stage right before menopause, which is characterized by the cessation of menstrual cycles): https://helloperiwinkle.com
- Savvy Co-op helps people use their personal experiences to improve health care delivery and innovation: https://www.savvy.coop
- We Are Not Waiting is a community of patient-led activists calling for an end to the innovation bottleneck related to diabetes devices: https://wearenotwaiting.org
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