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Susannah Fox

I help people navigate health and technology.

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Archives for August 2010

E-patients, Cyberchondriacs, and Why We Should Stop Calling Names

August 30, 2010 By Susannah Fox 63 Comments

New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite you (everyone!) to join our discussion on Wed. Sept. 1 at […]

Filed Under: trends & principles Tagged With: Alex Howard, Amy Tenderich, Carlos Rizo, Clay Shirky, Cyberchondriac, e-patients, Harris Interactive, Jen McCabe, Pew Internet

Living N=1–Susannah Fox

August 9, 2010 By Susannah Fox 1 Comment

If you haven’t listened to the Patient Voices series on The New York Times site, let me be the first to recommend it. I spend quite a bit of time writing up survey data, working with moderately large respondent pools (N=2,253 is the number of people who completed my last health survey; N=609 is the […]

Filed Under: found on the net Tagged With: New York Times, scleroderma

Patient Communities: Which Way Forward?–Susannah Fox

August 9, 2010 By Susannah Fox 12 Comments

If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek SimCity exercise. I was actually asked that question recently, by people who have lined up the […]

Filed Under: patient networks Tagged With: ACOR, cancer, Decision Tree, health 2.0, imedo, iWantGreatCare, paginemediche.it, Paris, participatory medicine, patientslikeme, Pew Internet, The Moment

“Give Us Our Dammed Data” – Regina Holliday–Susannah Fox

August 2, 2010 By Susannah Fox 1 Comment

17 authors with weapons in hand stare down upon the viewer. The three panel painting measures 60 inches by 144 inches. It is a very large painting, and yet it is crowded with those who have been hurt and those who have suffered. Every one of them is an author. Nearly everyone in the painting […]

Filed Under: key people, medical records

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
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