• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Writing
    • greatest hits
    • beauty and wonder
    • demographics
    • featured commenters
    • health data
    • key people
    • peer-to-peer health care
    • positive patterns
    • public Q&A
    • trends & principles
  • Research
    • How Young People Use Digital Media to Manage Their Health
    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: teens and young adults, social media, online health resources
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Pew Research: Americans’ Data Worries
  • About me
    • Now
    • Curriculum vitae
  • Upcoming events

Archives for November 2009

Engage With Grace

November 26, 2009 By Susannah Fox Leave a Comment

Alexandra Drane and her team have a new post on The Health Care Blog about how to put this holiday to work in a new way. Here’s a snippet: Some conversations are easier than others Our original mission – to get more and more people talking about their end of life wishes – hasn’t changed. […]

Filed Under: e-pts resources Tagged With: Engage with Grace

The Pew Internet/Health FAQ

November 20, 2009 By Susannah Fox 11 Comments

A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious […]

Filed Under: public Q&A, trends & principles Tagged With: Anonymity, Baloney Detection Kit, British Medical Journal, Carl Sagan, Cdt, Center For Studying Health System Change, Daniel Solove, Diagnostic Aid, Family Caregivers, Google, Health Privacy Project, Jules Polonetsky, Medical Library Association, Pew Internet, Taxonomy

Participatory medicine and health data rights on NPR

November 16, 2009 By Susannah Fox 10 Comments

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]

Filed Under: general, health data Tagged With: Answering Questions, Assertions, Buddies, Case Mix, Collective Decisions, Health Care Decisions, Health Care Revolution, Health Data, health information, Health Professionals, Health Searches, Health Systems, John Horrigan, Joseph Shapiro, Medicine, Medicine And Health, Mediums, npr, Offline Sources, Pareto Principle, Partnership, Person Accounts, Pew Research Center, Real Health, Tom Ferguson, Twitter, Walks Of Life

Tell the FDA the whole story, please

November 8, 2009 By Susannah Fox 26 Comments

Exterior of the National Museum of American History in Washington, DC, with the Washington Monument in the background

I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of […]

Filed Under: policy issues Tagged With: Amia, Ammo, Ammunition, Amp, Aspx, Boundaries, Consumer Information, Fingers, health care, health information, Health Research, Health Search, Health Seekers, Health Websites, Healthypeople, Hhs, Information Quality, Information Retrieval, Internet Data, Internet Health Report, Jonathan, Jonathan Richman, Medical Advice, Medical Information, Medical Library Association, Menus, Mla, Mole, Pew Internet, Pew Research Center, Quality Game, Quality Indicators, Research Question, Respondents, Salmon, Short Answer, Social Impact Of The Internet, Thre, Three Quarters, Timeliness, Vital Decisions, Watchdog, Www Health

Before Footer

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Recent Comments

  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

Footer

Follow me on Twitter

My Tweets

Topics

  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
  • Positive Patterns
  • Public Q&A
  • Trends and Principles

popular posts

  • Caregiver starter pack
  • Engage with Grace
  • Hack needed: Tiny pills, trembling hands
  • The Value of Data

Explore

Copyright Susannah Fox © 2023 · WordPress · Log in