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Susannah Fox

I help people navigate health and technology.

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Archives for February 2012

The Power of Rare Disease Patients

February 25, 2012 By Susannah Fox 2 Comments

I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a transformation of healthcare in this country. Pew’s Susannah Fox has named them […]

Filed Under: e-pts resources

Health, Technology, and Communities of Color

February 16, 2012 By Susannah Fox 20 Comments

Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting convened by CommonHealth ACTION. I’ll share some insights I picked […]

Filed Under: positive patterns Tagged With: Black Lives Matter, HIV/AIDS, Mobile Health, Natalie Burke, Pew Internet

What’s your health care dream?

February 3, 2012 By Susannah Fox 11 Comments

Regina Holliday's painting for the Families USA conference

Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – spotlights on circles of people, […]

Filed Under: hc's problem list, reforming hc, social media Tagged With: #whatifhc, C3N Project, Regina Holliday, The Walking Gallery, Twitter

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Recent Comments

  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

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