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Susannah Fox

I help people navigate health and technology.

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Archives for November 2014

We are all fellow travelers (even if we don’t look sick)

November 22, 2014 By Susannah Fox 14 Comments

Crowd at airport

Inspired by a call for essays about e-patient travel stories:  There is an unspoken code at airport gates. Don’t touch me. Don’t touch my stuff. Don’t step in front of me unless you have a heck of a good reason, especially if I got here before you did. We mark out our territory and imperceptibly […]

Filed Under: others' e-patient stories Tagged With: mitochondrial disease

Save us, Facebook

November 20, 2014 By Susannah Fox 24 Comments

Erin and Drew

The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: cystic fibrosis, Erin Moore, Facebook, Inspire, mitochondrial disease, patientslikeme, Smart Patients

Public Q&A: How to support an introvert in an increasingly connected world?

November 13, 2014 By Susannah Fox 31 Comments

All signs point to a social revolution in health. As I’ve put it, the internet gives us access not only to information, but also to each other. Crucial advice can come from a just-in-time someone-like-you as well as from a clinician. So what happens to people who are shy or introverted? If sharing and learning […]

Filed Under: e-pts resources, end of life, patient networks, peer-to-peer health care, public Q&A

The Teal Pumpkin Project

November 12, 2014 By Susannah Fox 10 Comments

I live (mostly) by Michael Pollan’s advice to “eat all the junk food you want as long as you cook it yourself.” But Halloween is an exception. We live in a Sesame Street-like townhouse neighborhood in Washington, DC, so my kids can easily hit 100 houses while trick-or-treating. The candy haul is epic. My food-allergic son has always […]

Filed Under: positive patterns, social media Tagged With: food allergy

Up, up, and away

November 8, 2014 By Susannah Fox Leave a Comment

View of clouds and an airplane wing

I’m experimenting with a new publishing platform: Medium. I’ll eventually post the entire essay here, but for now I’d love it if you would check out this story — and recommend it to others if you like it! What I learned going down an emergency slide

Filed Under: peer-to-peer health care Tagged With: peer-to-peer healthcare

Data for health

November 4, 2014 By Susannah Fox Leave a Comment

Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]

Filed Under: health data, policy issues, trends & principles Tagged With: #data4health, Health Data, Health Data Rights, Office of the National Coordinator for Health Information Technology, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
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