I love talking about peer-to-peer health care, noodling over survey research questions, and meeting new people. Thanks to an introduction from Craig Lipset, I recently got to do all three. Denell Lewis is a student in the final year of her Masters of Regulatory Affairs/ Masters in Law program at the University of Pennsylvania.
She writes:
I am currently finalizing my Capstone project for the MRA program. My project investigates the positive and negative outcomes associated with online support groups, particularly in clinical research and how this may shape the future of clinical research. I am hoping to gain insight into the ways social outlets might also improve patient experience and what, based on past experiences, patients would like to see changed in the future.
Denell is fielding an online survey to gather input from clinical trial participants, both past and present. Let’s help her succeed! Please share this link to Denell’s survey with your networks, particularly if you are part of an online support group related to a clinical trial.
If you have questions, please comment below.
Image: Close-up of doctor’s hands, vaccine, and arm, by Heather Hazzan, courtesy of the SELF x American Academy of Pediatrics Vaccine Photo Project: Medically accurate vaccination photography that anyone is welcome to use for free.
I’d love to hear about clinical trials of the new weight-loss drugs believed to help people with diabetes and pre-diabetes
Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since it’s shown to be effective in weight management:
Tirzepatide Once Weekly for the Treatment of Obesity
https://www.nejm.org/doi/full/10.1056/NEJMoa2206038
(New England Journal of Medicine, July 2022)
The survey linked in my post is targeted at people who have participated in all types of clinical trials. If you have been a participant yourself, or the caregiver for someone who has been part of a clinical trial, you are invited to fill out the survey and share your experiences.
Happy to report that Denell Lewis circled back to share her final paper. It is fascinating (and earned her a well-deserved A). Thanks to everyone who participated in the survey.