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Susannah Fox

I help people navigate health and technology.

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Archives for July 2020

Advancing clinical registries to support pandemic treatment and response

July 27, 2020 By Susannah Fox 23 Comments

Close up of fuzzy dandelion seeds

The biomedical research model has a blind spot. People living with a condition or disease are traditionally seen as passive sources of data, not active participants in the research. We as a society miss out on promising avenues of inquiry. It’s time to widen our lens. On August 12, I’ll moderate a discussion about how […]

Filed Under: health data, peer-to-peer health care Tagged With: Body Politic, British Medical Journal, Council of Medical Specialty Societies, COVID19, Emily Sirotich, flip teaching, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, LongCovid, patient registries, Quantified Self, rheumatoid arthritis

How peer-to-peer health advice can help people take their meds on time (and so much more)

July 15, 2020 By Susannah Fox 1 Comment

Two sets of hands sort pills into a pillbox

(Yes, it’s the third post in 5 days from me, but when you’ve got cool stuff to share, why wait?) Matthew Zachary‘s podcast, Out of Patients, is one of my favorites because he brings his whole self to health care discussions, as you’ll hear in our conversation. It was a pleasure to unpack my latest […]

Filed Under: peer-to-peer health care Tagged With: #health2con, Amy Tenderich, Atul Gawande, Brene Brown, InquisitHealth, Institute for Healthcare Improvement, Invent Health, Matthew Zachary, patientslikeme, PillPack, podcasts, Tom Ferguson

Accelerating real-time electronic data capture for COVID-19 tracking and response

July 13, 2020 By Susannah Fox 1 Comment

UC Health line graph showing COVID19 cases across their hospital system in July 2020

The Council of Medical Specialty Societies and the Association of Academic Medical Colleges, with support from the Gordon & Betty Moore Foundation, are hosting a webinar series focused on COVID-19 patient registries. They are being offered free and open to the public. The second in the series took place on July 8 and addressed the […]

Filed Under: health data Tagged With: Andrew Ip, Atul Butte, Body Politic, Council of Medical Specialty Societies, COVID19, Jessie Tenenbaum, patient registries, Subha Madhavan, Tellen Bennett

Connecting during COVID-19

July 10, 2020 By Susannah Fox 5 Comments

Young woman holding smartphone with a person standing in the background

My friend and community colleague Margie Morris wrote a wonderful article for a clinical neuroscience journal that, with her permission, I am excerpting for a series of posts. My goal is to spark discussion about each of her insights. She writes: To meaningfully connect, we will need to do more than show up online. Now, […]

Filed Under: key people, social media Tagged With: COVID19, Margaret Morris

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

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