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Susannah Fox

I help people navigate health and technology.

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Archives for March 2013

Tracking for Health: Detailed Demographics

March 20, 2013 By Susannah Fox 8 Comments

Detailed demographic breakdowns for responses to health tracking questions

In response to popular demand, my Pew Research colleagues and I posted detailed demographic tables for the “Tracking for Health” study. I should warn you: These are not pretty tables. You may need a ruler to keep track of the rows and columns since we crammed as much data into each table as possible. But […]

Filed Under: demographics, understanding statistics Tagged With: Pew Internet, Pew Research Center, Quantified Self, tracking, Tracking for Health

“Every Mom and Dad of a child with a rare disease has earned an honorary PhD”

March 8, 2013 By Susannah Fox 5 Comments

People in academic regalia, photo by 1yen on Flickr

That’s a line from an essay entitled “cri de cure” by Ethan Perlstein. I tweeted it and got some great replies: Hahaha. I’m often asked by medical teams if I am a MD or nurse. I tell them ‘no,but I have a PhD when it comes to my daughter’ – @SolidFooting Yes! I know more […]

Filed Under: pts as teachers Tagged With: National Organization For Rare Disorders, Rare Disease

Was it a keynote? Or a seismic warning?

March 6, 2013 By Susannah Fox 9 Comments

Eric Topol’s keynote at HIMSS13, a massive health IT event, was a tsunami of ideas and visions for the future of health care. I wasn’t there, so I salvaged what washed up on my shore as a Storify. Why? Because I’m an internet geologist. I look for early warning signs of possible futures and Topol […]

Filed Under: net-friendly docs, positive patterns Tagged With: Eric Topol, HIMSS, internet geologist, mobile, tracking

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
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