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Susannah Fox

I help people navigate health and technology.

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Archives for April 2011

ISO: Randomized Trials–Susannah Fox

April 13, 2011 By Susannah Fox 10 Comments

I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)? My answer: I haven’t done a […]

Filed Under: found on the net Tagged With: Cancer Screening, diabetes, Diabetes Care, email, Health Org, Innovations, Innovators, Iso, Literature Search, Networking Web, Ocs, Patient Level, Preventive Health Care, Randomized Trials, Researcher, Social Networking, Variables

PatientsLikeMe goes wide

April 11, 2011 By Susannah Fox 6 Comments

PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]

Filed Under: found on the net, patient networks, peer-to-peer health care Tagged With: patientslikeme, peer-to-peer healthcare

An ode to health data rights

April 8, 2011 By Susannah Fox 10 Comments

Fun for Friday: David Hale singing an ode inspired by Regina Holliday and e-Patient Dave:

Filed Under: health data, medical records Tagged With: David Hale, E-Patient Dave, Regina Holliday

Peer-to-peer healthcare on NPR

April 4, 2011 By Susannah Fox 8 Comments

To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs“). I read up on the facts and try to make sense of the latest turn […]

Filed Under: patient networks

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
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