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ISO: Randomized Trials–Susannah Fox

April 13, 2011 By Susannah Fox 10 Comments

I received an email the other day containing the following question:

Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)?

My answer:

I haven’t done a recent literature search, but if I did, I’d start at the following sites:

http://www.ictconsequences.net/refbase/

http://www.jmir.org/search

http://www.innovations.ahrq.gov/

http://www.jopm.org/

I would also look at the presenters and innovators affiliated with these organizations and events:

http://www.connected-health.org/

http://www.medicine20congress.com/ocs/index.php/med/med2011

http://www.health2con.com/

Let’s help out this researcher. Where else would you look for publications or reports of trials in progress? Please add them in the comments.

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Filed Under: found on the net Tagged With: Cancer Screening, diabetes, Diabetes Care, email, Health Org, Innovations, Innovators, Iso, Literature Search, Networking Web, Ocs, Patient Level, Preventive Health Care, Randomized Trials, Researcher, Social Networking, Variables

Reader Interactions

Comments

  1. Eric says

    April 13, 2011 at 6:03 pm

    Check out the journal Health Affairs: http://www.healthaffairs.org/

    Reply
    • Susannah Fox says

      April 13, 2011 at 8:15 pm

      Thanks for making the jump from Twitter, Eric! I find that those @ replies disappear so quickly, whereas these blog comments will last.

      For example, just this week I referred back to 2 posts’ comments to look up some work that was referenced:

      What people living with disability can teach us
      http://e-patients.net/archives/2011/01/what-people-living-with-disability-can-teach-us.html

      and

      “They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy
      http://e-patients.net/archives/2010/12/they-never-took-his-sock-off-a-parable-of-patient-empowerment-resourcefulness-and-literacy.html

      But tweets from that long ago are, well, long gone.

      Reply
      • e-Patient Dave says

        April 13, 2011 at 11:30 pm

        > tweets from that long ago are, well, long gone.

        Lately I’ve been saying that tweets are like champagne bubbles. If you’re not there at the right moment, pop! You missed it.

        (And that, btw, is why Twitter is not “micro-blogging,” as it used to be called.)

        Reply
  2. Erica Holt says

    April 13, 2011 at 6:17 pm

    NIH announced late last year a series of trials testing technology’s role in helping young adults achieve healthy weights: http://www.nih.gov/news/health/nov2010/nhlbi-29.htm.

    Seven trials are listed. You should be able to find many of them on http://www.clinicaltrials.gov, or through the links and contacts in the news release. From what I can tell by searching, as I don’t know personally, many of the trials are not yet recruiting.

    For example:
    SMART: A Social and Mobile Weight Control Program for Young Adults: http://clinicaltrials.gov/ct2/show/NCT01200459

    Choosing Healthy Options in College Environments and Settings (CHOICES): http://clinicaltrials.gov/ct2/show/NCT01134783

    Reply
    • Susannah Fox says

      April 13, 2011 at 8:17 pm

      I feel like an idiot for not listing clinicaltrials.gov in the post — it’s the perfect place to start. Thanks so much, Erica!

      Reply
  3. Marcela Musgrove says

    April 14, 2011 at 12:12 am

    From my Consumer Health informatics class:
    Evaluation of an Internet Support Group for Women
    with Primary Breast Cancer by Andrew J. Winzelberg et al 2002

    Health related virtual communities and electronic support groups:
    systematic review of the effects of online peer to peer interactions Gunther Eysenbach et al BMJ VOLUME 328 15 MAY 2004

    Reply
  4. Susannah Fox says

    April 14, 2011 at 9:11 pm

    More input from Twitter, since I can’t seem to get some folks to make the jump:

    Patricia Levi, aka @songuest, wrote:

    Look at JAMIA https://www.amia.org/mbrcenter/pubs/jamia

    or CIN: http://www.nursingcenter.com/library/journalissue.asp?Journal_ID=54020&Issue_ID=1145187

    Another vote came in for clinicaltrials.gov from Dianne Rees, aka @Callooh:

    Wld actually try the clinicaltrials.gov database….http://clinicaltrials.gov/ct2/results?term=social+media

    Reply
  5. Dyanne Cano says

    April 15, 2011 at 1:50 pm

    I am working on a graduate thesis examining mobile messaging efforts for teens of color with Type 2 diabetes, and I think these resources may be helpful for your needs:

    CDC’s social media toolkit with good references at the end
    http://www.cdc.gov/healthcommunication/ToolsTemplates/SocialMediaToolkit_BM.pdf

    Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook
    http://www.ncbi.nlm.nih.gov/pubmed/20945113

    What social media offers to health professionals and citizens(good references at the end)
    http://www.who.int/bulletin/volumes/87/8/09-066712/en/

    A really helpful database
    http://www.ncbi.nlm.nih.gov/pubmed

    Reply
    • Susannah Fox says

      April 15, 2011 at 6:52 pm

      Dyanne, thanks so much! I really appreciate your taking the time to comment – as I do all the other people who have commented here and on Twitter. This is what I’m all about – building a research community that learns & shares together.

      Reply
      • Dyanne Cano says

        April 15, 2011 at 11:11 pm

        Thanks, Susannah. Happy to help–I have huge respect for your work!

        Reply

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